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@clamendo

According to a study I read, HU has no benefit to middle aged ET patients unless over Asprin unless very specific criteria are met. Long term use can lead to other issues. Seems like Pegasys and Besremi are $6k and $9k unless you make $100k or less for there coupon. I doubt people making enough to pay that long term aren’t participating on this forum.

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Replies to "According to a study I read, HU has no benefit to middle aged ET patients unless..."

Not sure what study you looked at. Of course there can be side effects with HU. I have none, but that often depends on the individual. Remember that HU has been around 50+ years, so effects are well documented. Peg and it's even more expensive sister, Besremi, are newer drugs, and long term effects are unknown. Interferon are the only drugs that MAY improve, vs control, ET. Jury is still out.

Sorry to throw more info at you and to give the impression of arguing. It would be great if your son has the means to try Peg. But there is a lot of unnecessary fear of HU out there, despite its having helped many people avoid clots and vonWillebrand Syndrome. I'm still kicking after 17 years with ET. Dad also had ET many years ago and was on HU. Lived to 82 and died of unrelated causes.