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Chronic Pain members - Welcome, please introduce yourself

Posted by Kelsey Mohring @kelseydm, Apr 27, 2016

Welcome to the new Chronic Pain group.

I’m Kelsey and I’m the moderator of the group. I look forwarding to welcoming you and introducing you to other members. Feel free to browse the topics or start a new one.

Why not take a minute and introduce yourself.

Interested in more discussions like this? Go to the Chronic Pain Support Group.

catheem | @catheem | 1 day ago
In reply to @rjschmid "Hi, My name is Rick. I was diagnosed with severe spinal stenosis. The pain and getting..." + (show)
@rjschmid

Hi,
My name is Rick. I was diagnosed with severe spinal stenosis. The pain and getting around is slowly getting worse with each passing week. I just recently had a trial neuro stimulator implanted in my lower spine for seven days. I didn't think it was reducing the pain level very much until the unit was removed. Day 2 brings a lot of pain and I think I might go for the permanent unit.
My questions to the group is, has anyone had good or bad results over time with a spinal neuro stimulator, and what can be done about the stenosis itself?

Thanks ...

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Has surgery ever been suggested? With spinal stenosis, the pain can be alleviated with spinal fusion. A pain specialist can help.

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1 reply
kmdenton33 | @kmdenton33 | 1 day ago

Yes - I went to pain specialist and they did a nerve ablation - everything has been 10x worse since I had that done. I had pain before but now in a CSS emergency state most mornings. Feels like something is seriously wrong with me and feel like I could go to the ER most days. I am able to calm myself down and not go into panic mode which is progress but I know that I can't live like this. Searching for solutions, praying, and trying to stay hopeful.
Thanks for responding 🙂

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1 reply
clphqs | @clphqs | 1 day ago

I’m 74 and live in Chicago. I recently had a shoulder replacement revision surgery and the recovery is long and painful. Also have arthritis and bursitis in both knee, chronic neck pain, and back pain, for which I had an L4-S1 fusion and currently get radiofrequency ablations every six months.

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kmdenton33 | @kmdenton33 | 1 day ago
In reply to @heisenberg34 "If you go to the ER, there is a chance you might get a group of..." + (show)
@heisenberg34

If you go to the ER, there is a chance you might get a group of physicians to get together and discuss your case. That might conjure up some ideas that could help your situation. If your pain is that bad, why not consider oxy if it becomes a viable option. Especially if it might bring your pain down and make life bearable again.

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Thank you for responding - I went to the ER and spent the night - they did CT scans and blood tests and heart tests - they didn’t find anything significantly wrong. Except that I was taking steroids from the ablation that was causing my symptoms to be 10x what they were. I was on Oxy for 6 weeks. I am a recovered alcoholic and can’t afford to be on Oxy. A few doctors are pointing to Central sensitisation Syndrom - feeling worse everyday right now and literally feeling like I am slowly dying. Today is a bad day - I have hope on ok days

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1 reply
heisenberg34 | @heisenberg34 | 10 hours ago
In reply to @kmdenton33 "Thank you for responding - I went to the ER and spent the night - they..." + (show)
@kmdenton33

Thank you for responding - I went to the ER and spent the night - they did CT scans and blood tests and heart tests - they didn’t find anything significantly wrong. Except that I was taking steroids from the ablation that was causing my symptoms to be 10x what they were. I was on Oxy for 6 weeks. I am a recovered alcoholic and can’t afford to be on Oxy. A few doctors are pointing to Central sensitisation Syndrom - feeling worse everyday right now and literally feeling like I am slowly dying. Today is a bad day - I have hope on ok days

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I am truly sorry to hear of your plight. We can only hope that modern medicine can someday find a way t help those of us suffering from this terrible affliction. Try to stay positive. I know how difficult it can be.

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vasilikisimpson | @vasilikisimpson | 8 hours ago

Hi I'm Betti.
I have been diagnosed with CIDP, a rare peripheral neuropathy. I have spinal stenosis coupled with various other spinal issues that make daily life very difficult. I'm also dealing with trigeminal neuralgia. That's the summary of the painful issues.

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catheem | @catheem | 5 hours ago
In reply to @kmdenton33 "Yes - I went to pain specialist and they did a nerve ablation - everything has..." + (show)
@kmdenton33

Yes - I went to pain specialist and they did a nerve ablation - everything has been 10x worse since I had that done. I had pain before but now in a CSS emergency state most mornings. Feels like something is seriously wrong with me and feel like I could go to the ER most days. I am able to calm myself down and not go into panic mode which is progress but I know that I can't live like this. Searching for solutions, praying, and trying to stay hopeful.
Thanks for responding 🙂

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I'm so sorry to hear about this. If it's possible for you, you should see a back surgeon for a consultation. Good luck to you.

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rjschmid | @rjschmid | 1 hour ago
In reply to @catheem "Has surgery ever been suggested? With spinal stenosis, the pain can be alleviated with spinal fusion...." + (show)
@catheem

Has surgery ever been suggested? With spinal stenosis, the pain can be alleviated with spinal fusion. A pain specialist can help.

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I have an appointment this Monday with my pain specialist. I will ask that question as well as other options available.

Thanks for the reply.

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