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@foodandme

Jen, hallelujah, I finally found someone like me. I'm sorry you're going through this, and my case likely won't bring you comfort, except to know you are not alone.

My condition is more advanced. It's been a long struggle. I won't get into all the details in a public forum, but I was suspected celiac as a child, put on a gluten-free diet, and did okay up until adulthood, when I started reacting to other foods. First it was dairy. Then peanuts. Then soy. Then corn. Then eggs. And on it went, initially ticking off all of the most common offenders, but over the years progressing to all grains except white rice and now even fruits, vegetables, and some meats are off limits. I can now eat only a few foods, and I worry I will lose the ability to eat those too.

The symptoms I experience involve multiple systems -- gastrointestinal, neurological, and the skin reactions would suggest immunological, but food allergy testing has been negative. Like you, I get the pain in my wrists, which over the years, has progressed to affect other nerves throughout my body. The pain is crippling.

Believe me, I have tried to reintroduce food triggers, and every time, it goes badly: the reactions become more severe with repeat exposure.

I've seen a lot of doctors. One gastro thinks it has to do with the gut-brain axis and possibly an underlying neurological cause.

If you want to stay in touch, maybe we could email. It helps to have support from someone who understands and compare notes.

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Replies to "Jen, hallelujah, I finally found someone like me. I'm sorry you're going through this, and my..."

Yes, that is kind of disheartening to hear! Thanks for sharing, and I'm sorry you've had to deal with all that! I haven't yet figured out the messaging feature here, but I'd like to exchange emails/stay in touch.