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Diagnosed: MGUS

Blood Cancers & Disorders | Last Active: 2 days ago | Replies (89)

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@amberl99

I would like (and am going to get) a baseline via bmb as well. Also a whole body CT to evaluate for bone lesions. I saw a cancer specialist who treats MGUS and Myeloma patients who has ordered these for me. I’m more of a need to know type person. I’ve read too much about the effects of MGUS (for some people) to sit without knowing. Maybe afterwards I can comfortably take the sit and wait approach. I don’t think there is a wrong way to decide, each person can make their own informed decision. I do appreciate hearing other people’s experiences on this forum, it helps.

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Replies to "I would like (and am going to get) a baseline via bmb as well. Also a..."

I had my BMB on May 7 and the test results are trickling in. My hemo/oncology appointment is on May 21. I am hoping that the results give me a clearer understanding of my prognosis. I switched to a mostly plant based diet when i was diagnosed with MGUS 2 years ago. I just turned 60 and want to live my best life. Yoga and meditation have helped with my my anxiety. Stay strong.