Replies to OMG I have CVID also, but I am always afraid if I write it like that…

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Bones, Joints & Muscles | Last Active: 1 day ago | Replies (25)

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@gussie

OMG I have CVID also, but I am always afraid if I write it like that I have to do the dog and pony show. When were you diagnosed?

Replies to "OMG I have CVID also, but I am always afraid if I write it like that..."

LaLa | @starseed | 4 days ago

I understand! I have 2 rare diseases (CVID🦓 & Autoimmune Encephalitis🦓🦓) plus a cluster of other autoimmune too.

You’re not alone! !

I was diagnosed with by an immunologist at Loma Linda a few years back.

Rheumatologists had findings of it as far back as 2014 but they aren’t well-versed in it. Actually, quite clueless.

I was on IVIG for autoimmune diseases first. But later for IVIG only. It was a game changer with regard to stopping infections!

Now you know someone you don’t have to dog & pony for😊

missey | @missey | 3 days ago

I have cvid also! It took them 15 years and six sinus and to ear operations to diagnose that