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I was diagnosed in 2018 RA tough time finding relief

Posted by gofishto @gofishto, Apr 25 4:42pm

I was diagnosed in 2018 I’ve tried all the medicines currently on xeljanz praying this
One will help. My Dr said after this that I tried them all the last option would be heavy duty
Infusion. Two nights ago suddenly I got this rash started in face burning red travelled all way to my feet. No fever, Bp normal. Within about 40 minutes it was gone. Anyone have a clue ?

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jw9 | @jw9 | Apr 30 3:33pm
In reply to @gofishto "Thank you for your reply, I was on Simponi did nothing I all I was told..." + (show)
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Thank you for your reply, I was on Simponi did nothing I all I was told this is the last one.!I see every now and then new ones coming out. I wish you well. Getting older certainly not for sissies.

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And your sense of humor will help all of us! "not for sissies" is right!

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gofishto | @gofishto | May 1 5:36am
In reply to @adlttl123 "Sorry that you’re going through such a hard time. I have severe RA and have been..." + (show)
Profile picture for adlttl123 @adlttl123

Sorry that you’re going through such a hard time. I have severe RA and have been on almost every drug out. Presently on RINVOQ and it’s helping so far. My last drug was XELJANZ. For me all the drugs cause me to break out in shingles so I keep a script of Acyclovir which helps me fight it off. I’m hoping that wasn’t what was happening to you with the itching. That itching episode has me very concerned. Did you call your doctors office and report it?? Good luck.

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I sent email waiting on reply
Thank you for the information.

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missamy | @missamy | May 2 6:05am
In reply to @adlttl123 "Sorry that you’re going through such a hard time. I have severe RA and have been..." + (show)
Profile picture for adlttl123 @adlttl123

Sorry that you’re going through such a hard time. I have severe RA and have been on almost every drug out. Presently on RINVOQ and it’s helping so far. My last drug was XELJANZ. For me all the drugs cause me to break out in shingles so I keep a script of Acyclovir which helps me fight it off. I’m hoping that wasn’t what was happening to you with the itching. That itching episode has me very concerned. Did you call your doctors office and report it?? Good luck.

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I had a lot of itching with my RA but found out it was due to DM. Itching can also be a sign of anemia

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gofishto | @gofishto | May 2 6:48am

I do have anemia thank you for info

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missamy | @missamy | May 2 7:00am
In reply to @gofishto "I do have anemia thank you for info" + (show)
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I do have anemia thank you for info

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These are such difficult diseases to manage. Seems like every day is something new. Stay strong

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adlttl123 | @adlttl123 | May 2 7:41am
In reply to @missamy "I had a lot of itching with my RA but found out it was due to..." + (show)
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I had a lot of itching with my RA but found out it was due to DM. Itching can also be a sign of anemia

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What is DM?

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missamy | @missamy | May 2 10:59am
In reply to @gofishto "Diabetes mellitus" + (show)
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Diabetes mellitus

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Dermatomyositis

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Mentor
Becky, Volunteer Mentor | @becsbuddy | May 2 10:25pm
In reply to @missamy "These are such difficult diseases to manage. Seems like every day is something new. Stay strong" + (show)
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These are such difficult diseases to manage. Seems like every day is something new. Stay strong

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@missamy Welcome to Mayo Clinic Connect! I’m sure that you will find help here!

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