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Newly diagnosed with AML (FTL3 TKD)
Blood Cancers & Disorders | Last Active: May 15 7:39am | Replies (36)Comment receiving replies
My husbands blasts in the blood were at 2% for several months, then went to 16% but have gone down to 9%. His bone marrow biopsy in January showed 8%. He was in a clinical trial using low dose chemo to slow down his MDS until January but was removed from the trial. He is now in hospital as he has no balance and has lost a lot of strength in his legs.
Replies to "My husbands blasts in the blood were at 2% for several months, then went to 16%..."
Hello @daleanddonna It’s been a couple of weeks since you wrote in about your husband’s MDS diagnosis and some of the side effects he’s experiencing. Has there been any improvement with his balance and leg weakness? I’m wondering if he’s been able to work with a physical therapist to regain some of his balance and muscle strength?
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Hello, @daleanddonna. I can’t help but think, Team Dean and Donna…united in this major life challenge you’re both facing with his diagnosis of MDS.
I’m so sorry to hear about the lack of balance and loss of strength Dale’s experiencing. I remember being much the same after being bedridden for 5 weeks during my early treatment for AML. My doctor had me working with the hospital physical therapist to help restore my balance. Chemo, loss of weight, lack of muscle mass and inactivity were the culprits. The exercises helped immensely to regain mobility. I was always physically fit so it was really disconcerting to feel so frail. There were several core building exercises that I was able to do without leaving the bed. Has there been any mention of PT for your husband?
Do you mind sharing a little more information? You mentioned Dale is no longer on the trial drug. Is he on any form of treatment for the MDS now?