← Return to Diagnosed: MGUS

Discussion

Diagnosed: MGUS

Blood Cancers & Disorders | Last Active: 2 days ago | Replies (89)

Comment receiving replies
@paulita

I got my blood results back so everything is going ever so slightly downhill. Lymphocytes and white blood cell count lower, kappa light chain higher, kappa/lambda ratio higher. So a slow creep upwards there. I have two weeks to wait for my appointment with my haematologist. I guess we will continue to watch and wait for 6 months or a year until my next blood tests and appointment. Unless he wants to do a bone marrow extract which I don't particularly want.

I decided to make a list of what I would do if I DID have a diagnosis of MM or Smouldering MM. What do I want to do in my life? Who do I want to see? Who do I NOT want to talk to or share with? Where do I want to go? What are my priorities? It feels nice to do that.

Jump to this post


Replies to "I got my blood results back so everything is going ever so slightly downhill. Lymphocytes and..."

Dont be overly concerned over slight changes. I go every 3 mths and last blood test showed my M protein and ratio went down a bit. These numbers can vary slightly both ways. Stay positive remember only 1% of MGUS turns into MM annually.