How are the super long-haulers doing 3 to 4 years out?

even worse.... i am 70 and have had it since 11/2019 when there was supposedly no covid19. it was terrible for 4 - 5 days and nites at home. it was on and off for the next 3 years then the 4th year it set in about july and never quit. instead of the normal fatigue, brain fog, memory trouble, sleep problems, etc.... now the doctors and hospitals all over texas, new mexico and colorado just treat problems whenever they come along... no doctors or hospitals would listen to me because so much time had passed since i had acquired it and there was no vaccine or even the virus at the time. if you haven't already, i would go to a pcp that believes in psac and get everything checked out..... this covid is in the process of taking over my body. i was in the hospital for 7 days in 11/2019 and now i have had a whole year of nothing but doctors, hospitals, surgeries, blood test, mri, ct scans everything imaginable. until they can find a way to stop the invasion of our cells by the covid virus, or a way to kill the 'pools' of covid in us, all we can do is have our team of doctors, hospitals and surgeons watch after us to keep us alive. my list of diagnosis, prescriptions, surgeries, caregivers is too extensive to list.

My husband&I both had Covid March 2020....it was called the "China Virus"...no official name yet. He has not had post covid syndrome at all, but I have over 2dozen +
issues. Was patient MayoClinic long covid clinic full week of tests& specialists. Their focus is on coping. The virus blocks messages from being communicated back&forth from your system to your brain. Worldwide research still unable to cure.

I too am experiencing a set back. It started with a Covid shot and then 2 weeks of stressful travel. I'm dragging, can't think or complete sentences. I was doing ok! So discouraging when I was hoping to continue to get better, not worse

I am in my 5th year of long covid, sick 11/2020 before vaccines came out. I traveled a couple weeks ago and was really messed up from it. I was sick/crashed/brain dead for 3 of the 7 days, then for a week after returning home.
What I've have come to believe is travel is VERY strenuous brain work. I struggle packing, have to get to the airport, look for the bag check, figure out how to print the bag tag, find where to check and drop off the bag, remember what I was told about which TSA place to go through, find the line pre-checked line, think about what do I need to put through their scanner, retrieve my things & check that I have everything, find out which gate and find my way there, find the bathroom, find the bottle refill station, do I want snacks or not, pay attention to the call for boarding & the right group, scan my ticket, find my seat & overhead bin, then all that in reverse upon landing.
It is easier landing in an airport I am familiar with, but nasty in a new one, finding which carousel for baggage retrieval then transportation.
I get overwhelmed, loose half the time I am gone with recovery alone, and then pay for it for a week after I get home.
MUCH more exhausting than working spreadsheets, finances or legal affairs at home!
This helps: My packing list is written and saved on my laptop so all I need to do is print it out. Reminders for reservations I need to make ahead of time is on the list (book flight, rental car, taxi to & from my local airport, boarding for my dog, lodging reservation & confirmations, hold the mail, let neighbors know I will be gone, send flight info to family members). Also last minute things when I am leaving (turning the water supply off, set the house alarm, bring my keys to unlock the house when I return, turn down the thermostat or up the AC) and take out the garbage.
Memory and balance problems problems begin at just preparing to go-I fell down the stairs the morning I was leaving).
good luck next time!!
RMS

I heard that there was a Covid institute near Irving, Texas the doctor is Dr. Robert Groysman. I’ve heard a lot of great stuff but not sure if it’s true. Here is the website. https://covidinstitute.org/
Maybe you’ve already been to him. Have you had any experience with him?

Hi, I have never heard of him but I had covid two times so in 2019 and 2020. I've had the vaccine for it before I got it the second time. I still suffer from that little irritating cough in my throat and my lungs are at a lesser capacity since then. I would also appreciate some information about how to proceed with the breathing issues.

I'm 83 years old and caught Covid 19 in October 2020. I had what's referred to as a 'mild case' meaning I didn't wind up in the hospital. I had my first case of PEM (post exertional malaise) 6 weeks after my original infection. I take *A LOT* of supplements; something to support every system in my body. I was extremely active in my previous life and now I'm happy to be able to manage a short shower; do some light housekeeping (now and then); feed my kitty; manage my meals and get together with a friend occasionally over lunch. I could go on and on...but, you get the picture.
For sure, I am better. In addition to my nutritional/supplemental needs, I have been forced to change my life-style (no more multi-tasking, etc.) and I practice yoga nidra 1 or more times per day which definately helps my nervous system and gives me back some energy. I continue to believe I can get back to feeling normal. Time will tell.
I get a lot of help from some free YouTube Channels and highly recommend: Gez Medinger (he's one of us), Healing Gems (let's try to get her to 1000 'likes' so the ads will be turned off) (Gemma is also one of us), then, there's Raelan Agle who is recovering from CFS and lastly check out Bateman Horne Center.
My best to all,
Pam

Sorry to hear about your breathing issues. If you are interested in something over the counter, I swear by Nature's Way Umcka Cough Syrup (there are 2 formulas) also, I love a product by Natural Factors titled "Lung, Bronchial & Sinus Health". I get these easily from Iherb.com.
And, for more help for all kinds of symptoms, visit the free YouTube channels of Gez Medinger (he's 5 years out and one of us) and there is the Bateman Horne Center.
My best to you.

I am so saddened by your story and others. I have had long Covid symptoms primarily fatigue and insomnia for almost a year. After having every test imaginable in nuclear medicine and endless blood tests, I was officially diagnosed with Long Covid: fatigue, insomnia, and PEM. I am approaching tx via different avenues. My social worker just recommended a book, “Mind Your Body” by Nicole Sachs. I am sharing this because I haven’t seen a reference to the program in this book. I just ordered Vision as a technological approach to assisting with monitoring physical exertion. After my last crash, I need ways to figure out more movement. I try to stay current with the latest research…..My best to you and others.

I’ve had it since 2020 as well and I’m not great. I developed asthma, allergies, ME/CFS, sleep issues, gut issues, and a vocal cord disorder. I’m still crashing and suffering.