← Return to Living with Parkinson's Disease - Meet others & come say hi

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@hopeful33250

Hello @sherrieshe and welcome to Mayo Clinic Connect. It is good to have you join the Parkinson's discussion group.

Yes, I know the feeling of, "not allow myself to believe it." I had a similar experience. It takes a while to wrap your mind around a chronic illness like Parkinson's, doesn't it?

From your post, I'm not sure of your age and you do not mention other specific symptoms other than tremors. Have you also had balance, walking, falls, or speech problems? Were you prescribed Sinemet for your PD (also known as Carbidopa/Levodopa)?

The correct medicine and regular exercise are the best ways to keep PD from becoming too debilitating.

Do you exercise on a regular basis?

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Replies to "Hello @sherrieshe and welcome to Mayo Clinic Connect. It is good to have you join the..."

Hi Sherrieshe,
Briefly, I just turned 75 and was diagnosed 5 years ago. I had no tremors or anything like that but my new PA noticed I didn’t swing my arms when I walked up to his desk. Too much Agent Orange in VietNam apparently. You’ll find no two people have the same experience but we’re here to listen to you and tell you what we have learned.

I will be 61 November 24th I started slight jumping and shaking in my left fingers back in 2012 but it didn't happen often so I thought it was nerves. That went on till 2018! Of course it was a little worse each year. Then in 2018 I found it harder to get in and out of my car and much harder to turn myself in bed. I fell when there was nothing to make me fall. My legs would get so tired when walking any distance. Then one day the shakes were so bad I felt like I was shaking inside as bad as I was outside. I went to my family doctor that day. He took one look at me and said I had Parkinson's. He sent me to a neurologist. A brain scan was done but that showed nothing which only helped me to think that it could not be PD. I was prescribed Carbidopa- Levodopa by my neurologist but that made me crazy. He then tried another PD med which was just as bad. I had bad dreams. I would wake up screaming and often woke up because things were flying at me that were not there. When I told my neurologist this he stated "Well the PD meds would not do that so you probably don't have PD"! His comment only helped me to believe my Family doctor was wrong with his PD diagnoses. Right now I am only taking meds for tremors as I refuse to take the others because of the things it does to me and makes me feel. So I feel in my heart it is PD but I am still fighting it in my mind. I live in a rural area in Northeast Pennsylvania so the selections of doctors are very slim here and due to the Virus I have had to cancel 2 appointments in Rochester New York.