← Return to Long awaited Drug for myelofibrosis (MF) has been released

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@loribmt

Hey @snakebite. What a great Ojjaara update! Thank you for taking the time to post this! Anything that can help with the anemia caused by MF is a game changer. Not having to require blood transfusions or chemo is a win/win! I’m so glad you’re having such good success with the drug.

I LOVE your attitude…it’s exemplary and impactful! You’re my kind of people. ☺️

I should ask though, have you experienced any side effects from the new medication?

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Replies to "Hey @snakebite. What a great Ojjaara update! Thank you for taking the time to post this!..."

It's very difficult to nail down side effects. Most of the oral meds I've taken over the years have given me various levels of, gulp, Diarrhea. That has increased a bit with the Ojjaara. Another thing that has increased since I started Ojjaara has been the Neuropathy in my lower legs and feet. I can't say for sure what caused it, but during the past 10 months it has increased. A couple of weeks back I started taking Gabapentin and though it is early to give a good report, it "seems" to be giving me some relief. Other than that I have not noticed anything in particular. I must add, this drug is VERY costly... I mean VERY costly. I am on the Medicare Drug program as my Primary, and have my BCBS Fed Employees as my Secondary. Without these plans I would have become a Gardner a long time ago. (i.e. pushing up Dasies)