← Return to Long awaited Drug for myelofibrosis (MF) has been released

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@snakebite

Howdy... just a update on this old post. After using Vonjo for a long time it stopped working for me. So about 10 months back I started the new Drug Ojjaara. It kicked in very quickly and took my CBC to a new high for me. I've spent the past 10+ months living a virtually normal OLD MANs life. Normal being that at least for now I have the regular Old Age things to deal with. No more Blood transfusions or injections were needed the past 10 months. However, a couple weeks ago my CBC dropped just a little, nothing huge. I received an injection of Ryblozol and things immediately jumped back up. I'm hopping that it will keep working for a long time. At this point in time I've already tried everything else so there is no place to go except back to Chemo and Blood Transfusions. I'll cross the bridge if and when I come to it. Right now I've got to get down to the Senior Center for my Exercise class, then back home so I can get my travel trailer ready for another trip! My advice is to keep as active as you can. Don't push yourself, but don't sit around all day either. Find a fitness program that you can do, and DO IT!

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Replies to "Howdy... just a update on this old post. After using Vonjo for a long time it..."

Hey @snakebite. What a great Ojjaara update! Thank you for taking the time to post this! Anything that can help with the anemia caused by MF is a game changer. Not having to require blood transfusions or chemo is a win/win! I’m so glad you’re having such good success with the drug.

I LOVE your attitude…it’s exemplary and impactful! You’re my kind of people. ☺️

I should ask though, have you experienced any side effects from the new medication?

Wondering what your dosage of Ojjaara is - how many mg and how many doses a day. Also, did you have any neuropathy before starting Ojjaara. Thank you for responding.