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Severe facial flushing

Posted by ebs1126 @ebs1126, Apr 26, 2024

Help! I keep having progressively worsening facial flushing. It is hot to touch and burns severely. Around my eyes stays skin colored. Here are some details:
The rest of my body isn’t hot. No sweating.
BP stays normal
Blood sugar stays normal during episodes (wearing CGM)
HR stays normal
Internal temp is normal
Happens in seconds. Lasts this intensely around 30 min. Calmer flushing lasts hours/constant.
Nothing has changed (diet, meds, soaps, stress, anxiety, etc)
ANAs 1:320 with a Nuclear, Dense Fine Speckled pattern. Rheumatologist wasn’t concerned and stated I didn’t need to come back.
Dermatologist doesn’t know. Not rosacea. Not carcinoid.
Allergist ruled out any allergy/histamine response.
Started on Oct 2023 this intensely. Now happening every 5-8 days. It has moved to my arms the last 2 times.
I am desperate to find answers.

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ldean31 | @ldean31 | 3 days ago
In reply to @liffbiff123 "I've been having this issue for years. Just on my face. It gets super red and..." + (show)
@liffbiff123

I've been having this issue for years. Just on my face. It gets super red and hot for no reason, especially if it's warm outside or a warm room. Been to a derm, allergist etc with no luck. It's dibilitating!!!

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My face gets really hot and red from time to time. It seems to happen more when the heat is on or the room is too hot. I also haveDisseminated Superficial Actinic Porokeratosis that is all over my arms and legs. I also have roscessa. It never occurred to me other people have the face thing. I've never asked a doctor what might cause it.

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zygote | @zygote | 2 days ago

one cause could be related to Cushings or hyperthyroid. Maybe your PCP can test for these endocrinology disorders.

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