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Amyloidosis and low SpO2

Posted by staystrong63 @staystrong63, Apr 28 8:58am

I have recently been diagnosed with Amyloidosis, although I don’t know yet what type I have. They sent my biopsy sample to the Mayo Clinic to determine that. I have been having many issues for the last 8 months and until my fat pad biopsy, the doctors were stumped. I have had a mariad of symptoms. One of the most concerning to me is that my oxygen levels drop very low and are constantly erratic. Does anyone else experience this with any of the types of Amyloidosis ?

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cb1327 | @cb1327 | May 1 12:37am

I have Light Chain Amyloidosis and the nature of this rare form is it attacks your organs , in this case my heart. I first became worried with similar symptoms and sudden increased weight gain. I hope you don’t have this version, it’s a tough one with fewer treatment options than the some of the other versions.

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staystrong63 | @staystrong63 | May 1 6:09am
In reply to @cb1327 "I have Light Chain Amyloidosis and the nature of this rare form is it attacks your..." + (show)
@cb1327

I have Light Chain Amyloidosis and the nature of this rare form is it attacks your organs , in this case my heart. I first became worried with similar symptoms and sudden increased weight gain. I hope you don’t have this version, it’s a tough one with fewer treatment options than the some of the other versions.

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Thank you for responding. Right now it’s a waiting game until my results come back. I too have been gaining weight and two weeks ago had unexplained PVC’s. I’m worried and scared to say the least. I’ve been reading about the different types and non of them seem good.
I’ve have a lot of varied symptoms, including fatigue, no stamina, the low and erratic sPO2, dyspnea, lower back pain, hair loss, loss of taste, lightheadedness, pressure in head. I thought they sent my sample out last week, but talked to the doctor’s office and found out they just sent it on 4/29. So it’s going to take at least 2 weeks before I get results.
I wish you all the best in finding relief. All my best to you.

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