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Let’s have a chat about what if anything works to improve your life wi
Neuropathy | Last Active: 1 hour ago | Replies (65)Comment receiving replies
Hello, Mafalda (@mafalda)
I'm another PNer whose chief complaint is poor balance and leg weakness. Both symtoms were worsened last spring when I came down with a septic infection, rendering me bed-ridden for most of last year. I'm a great believer in exercise, and I have a PT helper (although we're currently between insurance-approved episodes). I'm wondering what your experience was in recovering leg strength. Was it as maddeningly incremental as it has shown itself to be for me? Friends have told me not to expect a recovery overnight. And I don't. Nor will I give up trying. But I'm always interested in hearing what others' experience at recovering leg strength was like.
My very best wishes!
Ray (@ray666)
Replies to "Hello, Mafalda (@mafalda) I'm another PNer whose chief complaint is poor balance and leg weakness. Both..."
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Hi, I have been dealing with CIDP for about 5 years now. I had a crisis on 2023 that got me bed bounded, I got out of it with Prednison, Ivig transfusions, etc. but, the treatment that worked the best was physiotherapy. I cant emphasize enough how exercising the legs and arms made them strong and resistant to weakness. Strength brought balance. I was also lucky finding a physiotherapist that would strong massage the legs prior to exercise. That was a recipe for success.
But, I'm talking of serios exercising. I did it for a couple of hours DAILY! 24/7 for over a year, then I allow myself 1 day off, then 2 days off. keeping it at a five days a week exercising, weights, bands, etc. I got completely out of pain, imbalance, etc. Wish I knew about this before!