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Justin McClanahan, Moderator avatar

Pacemaker & ICDs: Introduce Yourself & Meet Others

Pacemaker & ICDs | Last Active: 6 days ago | Replies (132)
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Profile picture for nlfowler @nlfowler

Hi
I had a pacemaker defibrillator inserted in 2017 after being diagnosed with acquired long QT syndrome. Recently it had to be removed because a lead was covered with Staphylococcus lugdunensis. I had a subconscious Medtronic’s defibrillator inserted, then reposition due severe pain and 2 months later I still endure daily pain. I can’t lean against touch or move around in bed. I have asked that is removed and an ICD replace in my chest understanding that re infection may occur. Has anyone else had pain issues with a subcutaneous defibrillator?
Nina

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Replies to "Hi I had a pacemaker defibrillator inserted in 2017 after being diagnosed with acquired long QT..."
jc76 | @jc76 | May 1 5:59am

@nlfowler
I am on my 3rd ICD/Pacemaker.

My Mayo EP told me the biggest danger from a ICD/Pacemaker surgery is infection.

Asked your EP or surgeon did he find scar tissue in the area of the ICD/Pacemaker? I know when I had my last device surgery my EP said he had to remove a lot of scar tissue around the device.

I am not sure what a subcuteanous defibrillator is. Is it outside the body? Mine device is below my chest muscle. This was done as I did not have much skin to accommodate my device and the fact I was very active. From time to time it does get irritated (area around device) if I use my arms to much.

Did the take your lead out?

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