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Living with Parkinson's Disease - Meet others & come say hi

Parkinson's Disease | Last Active: May 1, 2023 | Replies (471)
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@jdb

Thanks Susan. I'm still trying to get my meds figured out. Sounds like you had similar issues with yours till you finally got the right dosage dialed in. I'm hoping to get there soon. It was reassuring for me to hear that I'm not alone in working through this.

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Replies to "Thanks Susan. I'm still trying to get my meds figured out. Sounds like you had similar..."
Teresa, Volunteer Mentor | @hopeful33250 | Sep 11, 2019

Hi @jdb, As @susan62 said it takes a while to get the meds at the right level. When I first started taking them I felt so much better so I thought more would be better, but it wasn't.

I have really found that less is better if I add in Stalevo which is carbidopa/levodopa and entacapone. Unfortunately, it is not on many of the formularies so you have to pay out of pocket. I use Good Rx Gold and purchase at Costco, which helps, but it is still expensive.

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