Hi
I was dx jan 24 and had been on hu for one yr. I could not handle the med I was sick everyday to an unbearable state. The Dr I went to was heartless as well as the PA. She would roll her eyes whenever I complained. I started on hu 5 days a wk then four then three then two until was on hu one day a wk and nothing changed with the side effects. I finally went off it on my own and found a new oncologist which I like very much. My platelets never went beyond normal when I stopped hu. It has been since Feb I stopped hu. I take an aspirin everyday and do dietary things to keep the platelets down. I drink pure 100 percent sugar free Welch's grape juice (quarter of glass) every morning, dark chocolate, pure cranberry juice and green tea every morning. I watch my diet about 50 percent. So far my platelets are at 407-410. My new Dr said we can keep a watch for now. I see him again in 3 most. He knows I had a hard time with hu with the other Dr and said he will research a med out of the class of HU and see if I would try it or not. In mean time he said cont aspirin to prevent stickiness of platelets. I also pop a turmeric once in while to prevent the stickiness of platelets as well. Just hope this all lasts so I don't need meds. Originally my platelets always ran around 500-600. Hope this all helps you, take care!

Hello good news my Platelets are now at 333 I feel much better lots of energy and I take 1000 HU mg a day, I take them at night around 8 that way I don't feel the fatigue because I am sleep, Someone on the support group told me to take the pills in the evening before bed it really works. If you would like to talk please let me know. Jen