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Is Cutaneous T-Cell Lymphoma a Death Sentence?

Blood Cancers & Disorders | Last Active: 3 days ago | Replies (32)
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@loribmt

Hi Wendy, @hariet1. Somehow this post snuck past me! So let me wish you a delayed Welcome to Connect! What did you find out from your biopsy? Do you have CTCL?

There are subtypes to this condition that can warrant their own treatments. Were you able to get a firm diagnosis and begin treatment? (This may be helpful for other members) Was your diagnosis through a dermatologist or oncologist?

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Replies to "Hi Wendy, @hariet1. Somehow this post snuck past me! So let me wish you a delayed..."
steiner | @steiner | 3 days ago

Hi
I have been diagnosed with Primary Cutaneous extranodal Marginal Zone B-Cell nonhodgins Lymphoma CBCL because of a biopsy. Does anyone else have this diagnosis?

I have been informed it is extremely rare and only 1 person in 3 million have it. I don’t know of anyone else who has exactly this?

Would anyone else who has this? Please contact me

Thanks

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