Hi Missey,
I have:
Encephalitis
Rheumatoid Arthritis
Sjogren’s Syndrome
Lupus
Hashimoto’s
CVID

Per literature, significant flares can occur immediately or over time (patients might not connect to Prolia to the flare up). And it’s unknown how long this reaction will happen, possibly even after the 5-6 months the drug is in the body.

Yesterday I saw my endocrinologist for thyroid & he was surprised to learn of the class action lawsuits nationwide.

I believe the lawsuits are more for spontaneous fractures & dental/jaw issues, but when I called Amgen for help, my issues were sent to legal right away. I didn’t understand why until later. Mostly they collected info. No help.

I also reported to FDA. Prolia safety rep began calling me shortly after.

The flaring began right away & I’m now having jaw & teeth issues being checked. One thing on top of the other.

My intention isn’t to scare anybody. But we who have moderate to severe autoimmune disease/s need to be careful. We’re going through enough!

I don’t think any pharmaceutical company reps tell drs about all side effects, but the clinical info for doctors is loaded with them. I doubt doctors read through the fine print.

There’s a reason why Prolia is a black box drug.

I also wasn’t informed that Prolia is an immune suppressing immune modulator. So now I’m on 3 immunosuppressants - Humira, Prolia, & Steroids to control the fallout. What a mess. I’m so sick & angry!

I’m glad you’re researching. None of the osteoporosis drugs are free from significant side effects. But maybe one is better than the other. BTW, my Rheum staff thought Prolia was better for me. They were wrong.

Take care.