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@alistair01

Hello All, I had first symptoms 24mo ago & was diagnosed 18. Tremor in dominant arm has progressed, typing on my phone or making hand written notes is now tricky & I cannot always conceal my shake. But I am not aware of any other symptoms & am still working 1/2 time & enjoy vigorous tennis etc.
My regime is a) to treat the biome initially per (google) Colin Potter's advice & now evolved under a dietitian with, diet, supplements, no beer & limited wine (red only), b) Vit B1, 500mg x2 twice daily, (thank you Royprop & Dr C) & c) exercise vigorously 3x pw, stretch & balance work in addition 2x.
I take no drugs & my instinct is to avoid them as long as reasonable.
Two questions for all the experts on this group, please!
CBD seems well established as a pain reliever. But does it have a credible track record in other PD areas notably in arresting progression? If so - what variant? Thoughts?
I picked up the end of an item on the news saying (with excitement) that the Mayo was conducting Trials into diseases such as Alzheimers etc, but it also name checked PD, with a new drug that (sorry!) began with S. Anyone know more!?

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Replies to "Hello All, I had first symptoms 24mo ago & was diagnosed 18. Tremor in dominant arm..."

500mg of thiamine hcl twice daily is low dose. The therapeutic level is two grams twice daily.

Hello @alistair01

I'm not sure what new drugs you are speaking of, but I did find something on the Michael J. Fox website about a new drug to treat PD as well as other neurological problems. Here is a link, https://www.michaeljfox.org/foundation/news-detail.php?research-roundup-new-alpha-synuclein-therapy-begins-clinical-trial and another about Cerevel, https://www.michaeljfox.org/foundation/news-detail.php?pfizer-parkinson-drugs-will-be-developed-by-start-up-cerevel-therapeutics.

These seem to be in the clinical trial phase right now. Does anyone know anything else about these drugs? Are you involved in a clinical trial now?