Share your test results (if you'd like)
I thought it might be helpful to have a thread dedicated to sharing routine test results, good or not-so-good. My intention is just to provide a place for sharing, support, and encouragement, not for debating tests and treatments
I'll start. I've been at stage 4b oligometastatic for over 2½ years, and last Friday I did my routine 12-week bloodwork. My PSA remains below 0.01 (undetectable), Orgovyx and Erleada are holding my testosterone at 0.2, and the other tests are in normal ranges, except for those related to iron, which are slightly low.
Overall, it was a banner day! 🎊 I always treat myself to a masala chai at the little Indian café across the street while I'm waiting for my results to pop.
Do you have any recent test results you'd like to share?
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It's moving in the right direction, which is always a good thing.
WOOOOWWWW !!!! WOOT WOOOT !!!! CONGRATS North < 3 !!! That is just wonderful on all levels !!!
CHEERS and may it stay this way forever and ever < 3 !!! Actually may it just be gone completely one day soon when they discover even better meds that produce complete cure !!!
I am soooo happy for you and I wish I can send you extra large masala chai : ) !
Funny you should mention that! I'm boiling water for a home-made (admittedly, inferior) masala chai right now.
I forgot to mention that I am clairvoyant XP , ha ha.
JK JK , you mentioned it in one of your posts ; ), that you like masala chai < 3 so I remembered 🙂
Thank you!
Ron
I just had my Pet scan done the results are in but I’m too chicken to look it up on mychart so I’m waiting to hear from my Doctor I don’t know what it’s worst waiting for the Doctor to call me or just look the darn thing up 🙁
Zzotte
It might help to be clear about what you'd want to accomplish by looking early. Are you looking for reassurance? Advanced warning if something's bad? What will you do if there's language you don't fully understand, and might be bad or just harmless?
I did choose to look at my bone scan results this week, and they were clear and comprehensible. The opening sentence was
"At this time, there is a no convincing evidence of bone metastatic disease given the current context."
Which made me less stressed researching what the technical language in the rest of the report meant. But not every doctor will write a clear, layperson-level summary like that.
Recently got the results of my 3rd psa test after NS RARP in late 06/2024 and it's < .04 so I'm very happy. I'm 71 now and while I know it may come back later, I'm still happy for now. Plus this tele visit with Mayo Phoenix I actually happened to get my surgeon (Dr. Andrews). I didn't expect that as the first 2 tele visits I had staff urologists at Mayo. I was very glad to see him as it gave me a chance to thank him directly and express to him how good a job he and his team did on me (at this point I'm fully continent and my sexual capability is continuing to slowly improve).
I was diagnosed with oligo metastatic disease almost 4 years ago. Finished triple therapy end of 2022. off all medication as of July 2023. Remain PSA undetectable. My MO at Hopkins put me on testosterone (T) replacement 6 months ago since my T never fully recovered from the Lupron. Last week labs showed PSA remains undetectable and T is within normal range. Feel much better with my T back.
Great to hear you are feeling better. I have 10 weeks left on ADT with Orgovyx with T=2 and PSA undetectable and looking forward to the end of treatment. I'm a naturally low T guy and a boost would be appreciated. Just great to hear guys recovery and moving forward.