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Living with Parkinson's Disease - Meet others & come say hi
Parkinson's Disease | Last Active: May 1, 2023 | Replies (471)Comment receiving replies
I told my wife. I spoke with my minister prior to doing so. He reassured me that because my attitude was good due to my faith and trust in the Lord, that it would be a stabilizing and calming effect on those close to me as I gave them the information (she does not share my faith, yet, and I do not push her). That seems to have been the case. She was at first anxious but quickly became at ease as I explained the disease and my trust in God for His plan (which He did reveal to me the day after the diagnosis as I asked Him to do).
For anyone this might help, His Word was revealed to me through my daily reader: Proverbs 24 verses 10-12 and the interpretation of those verses as follows: "Trusting in God rather than our own schemes during times of adversity and relying on God when we are hurting often speaks the loudest to those who do not know Jesus. Our greatest platform to influence people for Christ is when we live with the hope of spiritual wisdom. Doing so may very well be the means God uses us to deliver those who are marching toward eternal death. Because we cannot claim ignorance and forfeit our mission to reach the lost, we dare not waste our adversity."
God speaks to us. We only need to ask and to listen. He will present us with His direction for us to follow. It is our free will to choose or not. Attempting to choose what is in front of you in a manner that is consistent with His Word will result in Him guiding your footsteps as you follow the path He presents. When you trust in the Lord, you will see the path He places in front of you to follow. You will "hear" Him speak to you in many ways if you just "listen." I have confident expectations (hope) that this will help someone in their journey with this disease. Praise the Lord.
Replies to "I told my wife. I spoke with my minister prior to doing so. He reassured me..."
Hello @stephenmcelroy
I am glad to hear that the conversation with your wife went relatively well. The fact that you were at peace with your diagnosis was a helpful, I'm sure. Making known your diagnosis is a good first step.
Have you been referred to a neurologist, yet? If not, I would like to suggest that you seek a Movement Disorder Specialist. These specialists are neurologists who are especially trained in movement disorders (of which PD is one of those disorders). A general neurologist is not always as good in treating PD as is a movement disorder specialist. Here are a list of movement disorder specialists at the Mayo clinics, https://www.mayoclinic.org/diseases-conditions/movement-disorders/doctors-departments/ddc-20363911?Page=2#44525362caf74b6080dda86e07205b76. You can probably find such a specialist near to you as well.
Will you keep in touch?
Hello @stephenmcelroy
It has been a while since you last posted about your PD diagnosis. How are you doing? I hope by now you have found a neurologist who is helpful to you. I would enjoy having an update from you.
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Hi, @stephenmcelroy - glad to hear you were able to have a conversation with your wife about your diagnosis and that she became at ease as you talked more about it.
Sounds like you are getting things all organized for your regular PT regimen. Are you seeing progress or positive effects with doing the exercises? You also mentioned no meds. Are you planning to start medication in the future, or what are you and your doctor planning for treatment going into the future for your Parkinson's?
@ramblyn - how are things going with your husband with his teeth chattering and the other facial movements you'd noted? Have you and your husband gotten to talk to the doctor about these symptoms?