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Living with Parkinson's Disease - Meet others & come say hi
Parkinson's Disease | Last Active: Dec 7 2:32pm | Replies (532)Comment receiving replies
I’m just curious with the high doses of thiamine, do you have regular blood test or anything? I want to get this to try on my mom whom suffers a great deal with neck and hand tremors. I guess it is over the counter?
Thank you for your information!!!!
Replies to "I’m just curious with the high doses of thiamine, do you have regular blood test or..."
Thank you again for this information!! I’m going to start my mom on this. They have added primidone and clonazepam to her card/Levo. Has really made her sleep and leg weakness. I’m all about a less aggressive way to treat the tremors.
Did you start with thiamine when first diagnosed? Do you have to meet certain criteria to get on it? Do you know if most doctors prescribe it. I’m not on Facebook. Thx for any info you can give me.
I was diagnosed in in 2012. In six years the Parkinson's symptoms became disabling. All this time I tried many of the standard Parkinson meds trying to find the right fit. I researched on Google for alternatives. Then I found B1 and Doc Costantini. He is a wonderful doctor and human being (charitable). He has office in Italy. If you want to travel to his office for an appointment, he has office exam fee. IF you cannot or do not want to travel to Italy, he will help you via internet without charge. He speaks only Italian but has associate doctor and staff with English language. Seven month ago, through internet, the doctor advised me on thiamine hcl and recommended my dose. At no charge.
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https://healthunlocked.com/user/royprop
https://healthunlocked.com/parkinsonsmovement
B1 Thiamine HCL therapy reference / stop progression, suppress motor and non-motor symptoms:
(Thiamine HCL is oral substitute to IM B1) 2 x day (morning 2g and at lunch 2g)
Doctor Costantini strategy that I find helpful "thiamin hcl stops the progression forever...".
Parky people say the first five years is your honeymoon stage with Parkinson's. After that, progression more rapid.
I have gone from slow motion to normal motor action since joining the growing number of PwP that have started B1 regimen/protocol. –
Doctor Costantini - “Why is this? Because there is no medicine or drug that is able to affect all of the organs, whereas all of the organs function thanks to Thiamine. An important detail”, adds doctor Costantini, “the Thiamine therapy brings no collateral damage with time”.
Google search: Doctor Costantini Parkinson
Dr Antonio Costantini, carapetata@libero.it
https://highdosethiamine.org
https://highdosethiamine.org/therapy-2/
https://m.facebook.com/groups/232260083958797?view=info
I am retired and spend my free time informing (PwP) People with Parkinson's. Please ask for more information.
Parkinson's Relief, Questions and Answers Link:
https://healthunlocked.com/parkinsonsmovement/posts/138096744/dr.-costantini-dr.-colangeli-answer-40-frequently-asked-questions-faqs-about-thiamine-b1-protocol-email-carapetata-libero.it
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Normal B1 blood level is to be expected. The therapy involves increasing the thiamine hcl level (Vitacost thiamine hcl in 500mg easy swallow capsules).
My personal experience - The positives: no button difficulties, brush my teeth now w/o needing elect brush, more strength. Getting in and out of bed, turning over is easier. No more constipation. Parkinson's progression stopped. Suppressed all motor and non-motor symptoms...
parkinson's high dose thiamine hcl
https://www.facebook.com/groups/232260083958797/about/
https://highdosethiamine.org/therapy-2/
Tremor is not easily impacted by thiamine hcl. It takes time with thiamine hcl and carbidopa/levodopa.