← Return to Chronic pain after craniotomy

Discussion

Chronic pain after craniotomy

Brain Tumor | Last Active: May 1 10:30pm | Replies (14)

Comment receiving replies
@lhunnewell222

I had 2 MVDs last year for TN and this 2nd time, I also have pain around the area of entry. I also have strange temple pain and recurrence of v1 pain. I had an MRI last night and meet with my surgeon today- but I am going to get a 2nd opinion at the Mayo in Phoenix as I live in chicago. Have you had any improvement since?

Jump to this post


Replies to "I had 2 MVDs last year for TN and this 2nd time, I also have pain..."

Oh my gosh. Having one mvd was hell I can’t imagine having two! As far as my TN goes, the mvd worked. As far as everything else, there hasn’t been any improvement. The pain around the incision area comes and goes. I do have fibromyalgia and sometimes I wonder if that’s part of the recurring pain. I really do think they damaged the nerves though. And the chronic neck pain and tightness is still very much an issue and all my doctors and masseuse believe it is caused by all the scar tissue on my scalp. It feels like all my muscles are being pulled upwards to the incision area. And no amount of stretching, trigger point injections, or muscle relaxers have decreased that. You’ll have to let us know what the Mayo Clinic says when you go!