SIBO, or Duodenitis, or what?
I’ve been through a battery of tests with no issues found so I figured it’s time to reach out to see if someone else’s experience could help diagnosis.
Prior to my current issues I’ve had minor digestive issues such couple days a week i’d have diarrhea multiple times in the morning, or id be woken up at night by digestive “rumblings” but nothing that seemed worth seeing a doctor over. I was also diagnosed with type 2 diabetes about a year ago (probably have had it for a while before then though)
My current issues started with me waking up one night with what felt like just typical bad indigestion from eating spicy food to late at night. Normally when this happens I just sit up for a few minutes and the pain passes with a bit of gurgling sensation in my stomach. This time it didn’t the ache just wouldn’t stop. The next day I felt a little less of an ache so I had some tomato soup for brunch. Two hours later I felt very nauseous and vomited. And barley at anything all day. At the end of the day desperate to eat something I tried smoking some marijuana. All though I still had pain in what felt like my stomach the nausea cleared up and I was able to eat. Three days later I saw my doctor he said wait 5 days to see if it’s just a “bug” I did and it didn’t go away. After having and ultra sound, a gastric empty test, and endoscopy all come back normal with no issues found my doctor agreed it could be trulicity causing the constant pain in what felt like my stomach as well as the diarrhea I had developed. After a month of no trulicity some of my worse issues like nausea did clear up but I was still left with the following symptoms. Alternating constipation and diarrhea, excessive belching to the point of (where is all the gas coming from?) and a sore ache in the dead center of my abdomen right where I the think the duodenum is. What ever is hurting I can actually touch by pressing the spot and it instantly gets more sore. After having a CT and CCK HIDA to check my gall bladder all come back ok no problem. I’m now waiting (have to wait 4 weeks) on a breath test for SIBO. (At this point I’ve had the constant pain for 2 and a 1/2 months). I am concerned though about what this test will show because some things do or don’t make sense for SIBO. For example although I do get bloating and belching the main thing that hurts is the thing I can touch and push on which dosn’t feel like the small intestines. Looking up SIBO online the pain should be from the bloating. Also I’ve had zero extra flatulence. I’ve been trying to fallow a low FODMAP diet and although what I eat does make some difference in the amount of belching, it dosn’t seem to match up to high or low FODMAP . For example two hard boiled eggs and oatmeal causes as much belching as a steak and cheese sub with onions and Mayo. The tenderness in the middle of my chest as well as the ache which at times can feel like hunger pain matches symptoms of duadentitis, bust my endoscopy show no problems.
If anyone could provide some insight if this sounds like SIBO or what it could be it would help me immensely.
Interested in more discussions like this? Go to the Digestive Health Support Group.
I should have known that the pictures I have seen of New Zealand were probably the prettiest parts. Yes, humans have messed up the earth something terrible. It makes me feel sick and sad. You would have liked Oregon I think. It’s very pretty and the coastline is gorgeous.
I don’t like to take medication either. I do take a tranquilizer to help me sleep because insomnia runs in my family.
What you said about the pain triggered another aha moment for me. (When you were talking about digging your fingernails into your palm) That’s why people self-mutilate! I admit as a kid I used to do that a little bit. It seemed to help me bear the emotional pain of my screwed up family. It takes your mind off what you can’t control or change.
It sounds like you must have a very creative mind if you were able to invent scientific instruments. If everyone were like me, we’d still be living in trees or caves. I can do word things well, but not invention, unless it’s poetry. Thankfully, we’re all different.
Please invent a way to transplant stomachs! I want a different one. Thanks in advance. 😊
Hi ,
I can go one better, I want a way to transplant my body for a good one!
My father and older brother were abusive and cut from the same cloth. My brother stopped when he found my strength was a lot more than he could muster, slaming his head into a brick wall quieted him down. As for my father that all stopped suddenly when I applied some of his own treatment back. I don't remember the incident but my family vividly recount an incident when I took a carving knife to him, he had my mother suspended by the throat. Ever since I have tried to not be like my father despite the violent nature I inherited when stirred, prefering to walk away.
Just experiencing a flare up this morning. I had veggie soup last evening that my wife made and it is kicking back. Seems like I can cross that off the tolerable list now. Take with caution in future. I'm sure she is not trying to poision me as we cashed in my life insurance!
I'm starting to prove this Autonomia is affecting my blood glucose levels when it is not supposed to be possible! Long thought it had some input but after 6 choky biscuits, see food diet, it tumbled this morning, relative to my norm, go figure.
I'm noticing these key board buttons are jumping around alot this morning so hope I'm making sense, my vision is compromised so everything is blurry for the moment, I hope. Just another challenging day ahead to keep me on my toes.
Cheers
@blessedwildapplegirl and @cheyne like you two, I am averse to prescription medications, much to my doctors’ chagrin. I often worry that my refusal to take prescribed medications (I only do when desperate, and only for as short a period of time as possible) will get me “fired” by my GP and any specialist she sends me to, and in Canada one cannot afford to lose a doctor since there is a much shorter list of available doctors than there are patients on waiting lists for them. 🤷🏼♀️ So I essentially pick my battles and choose which hill to die on - while I hold my breath when visiting my doctor or specialist, hoping I will not be prescribed anything! lol.
While I have built up a strong threshold to pain on my health journey, for certain procedures I still actually beg for freezing or anaesthesia! lol. Other than that, the only “bad” medications I take on a regular basis are just once a day medications for GERD (because of hiatal hernia), thyroid, psoriasis and overactive bladder. I have fibromyalgia and severe arthritis among other ailments but refuse prescription painkillers - especially any that have to be taken more than once a day. I just thank God I don’t have diabetes or heart disease because that would mean a much bigger list of medications!
I hear you on doctors handing out prescriptions! May I ask what the symptoms of your hiatal hernia were, and how they diagnosed it? Last night I had such terrible stomach distress, and when I pressed on the very top of my stomach, where I think my esophagus ends, it really hurt. My mom had one of those. Plus, she had colon cancer when she was about 65. She lived through it though.
I’m sorry you have to deal with all that. I’m lucky I have a primary care physician who is understanding and doesn’t get angry with me when I don’t take the things he suggests. But I know I frustrate him. But I’ve had some doctors walk out on me. It’s terrible. I like the way you put it: (although it’s sad, of course.) you have to choose the hill you want to die on. I get it! It shouldn’t be that way, but it is. I suppose there are pluses and minuses to having government supplied healthcare. It sounds good, but I have heard there are long waiting lists. Although to get into my doctor now is about a six month wait. It didn’t used to be that way.
Take care of yourself and thanks for sharing. 💕
I swear, I’ll never touch coconut milk yogurt again! Which is a shame because I’m on a limited diet and I loved it. Oh well, nothing is worth feeling this bad. I learned my lesson! I can’t believe I ate it again after it triggered such a terrible stomachache in me that last five months. Although I wasn’t 100 sure it was that, but I was about 90% sure. So much for listening to my voice of reason which told me I should probably not try it again! I do eat a very bland diet. I’ve been on one since they removed my gallbladder in 2012. It’s not fun, but I’m actually happy if I can eat anything, so I enjoy my food even though it’s bland and mushy. At least it’s food! Thank you for your support.
@blessedwildapplegirl oh wow … do you mean you sometimes have to wait a month to see your primary care physician?? The longest I have had to wait is about ten days, but if the receptionist thinks my problem needs to be taken care of sooner (they always ask what you want to see the doctor about) she will fit me in sooner - or I can ask her (and any specialist office) to put me on their cancellation list if they have one, to get an earlier appointment.
For specialists however, there can be anywhere from three to six months’ wait - if one is interested in taking on your case because of their full patient load! I suspect they are not interested in those who don’t warrant surgery or extensive treatment (read: if the government health plan does not think it is necessary or it is too expensive so will not pay for it) - but that’s just my take on it. One prime example is a woman who needed a specific medication to combat the rare cancer she had. She was refused the payment for it, and she certainly couldn’t pay for it. End result, she died. Then then the government made an about turn on the need for the medication but it was too late for her. Her months long fight, however, has benefitted future sufferers of that cancer - but at what cost to her!?
My GERD is caused by a hiatal hernia. The reflux I get can be severe enough to make it feel like I am having a heart attack because I can get chest pains that radiate into my jaw and back. After several cardiac tests a cardiologist prescribed nitroglycerin spray as needed because he thought I might have angina. The tablets did ease the pain. One day I went out without my spray and one of those attacks. Desperate, I went into a store and asked for a glass of water. Within minutes the pain subsided! The next time I got the pain I took a few sips of water and again the pain eased off, so that’s what I decided to do each time. I told my physician about it and she was okay with my stopping the spray. It finally turned out to be not angina, but acid reflux!
Here is a link that explains GERD:
https://my.clevelandclinic.org/health/diseases/17019-acid-reflux-gerd
Actually, I usually have to wait 3 or 4 months to see my doctor! We have a shortage here apparently. How crazy that you had to discover for yourself that water could help you rather than nitroglycerin! Before my mom was diagnosed with colon cancer, they told her that she was having heart issues and had her on medication for years. That’s why I find it difficult to trust doctors. Thank you so much for the link! I appreciate it. Your GERD sounds very painful! I hate it when I feel like I can’t breathe. 😩
@blessedwildapplegirl here’s something else that might interest you or help you:
https://health.clevelandclinic.org/vagus-nerve-stimulation
@blessedwildapplegirl the breathing problem could be caused by anxiety perhaps …? Just throwing something out there!
I suffer from general anxiety disorder (GAD) too, although I have not been diagnosed officially, and I find breathing exercises helpful. The second link I sent you about the vagus nerve also talks about breathing.
Thank you for the link. I haven’t checked it out yet, but I’m going to. I have terrible anxiety! I always have. And I carry it in my stomach. I’m also under a lot of life stress currently, so I’m kind of not surprised, but I need to be able to eat. I’ve always had IBS, but I’ve never had it come up so high like this. I suppose as you get older (I’m 70) it probably starts pushing on that flap. I was supposed to go have a CAT scan today and I was so afraid it would mess up my ability to eat that I canceled it. I’m more anxious on weekends and on Monday I start being able to eat again and I didn’t want to mess it up, so I think I’ll try to reschedule for a Friday. I know that sounds crazy, but if you understand anxiety, you know sometimes it seems to have a mind of its own. I’m sorry to hear that you struggle with that as well. Anxiety can cause so many different things. It’s hard on the body and also it can masquerade as other things, which I’m sure you’re aware of. I’m constantly trying to figure out whether or not something is 100% organic, 100% emotional, or a mixture of emotions and physical. It’s very hard to tell the difference. Thank you again for your help. I wish us both some relaxation and peace! Wouldn’t that be nice? They say you can rewire the brain, but it sure isn’t easy. Take care. 💕