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Living with Parkinson's Disease - Meet others & come say hi
Parkinson's Disease | Last Active: May 1, 2023 | Replies (471)Comment receiving replies
My name is Beverly and I decided to do some reading on Mayo Clinic as were grasping at straws on my mother whom hasn’t been dex with Parkinson but shakes very badly off and on. So I’m just trying to decide what our next step is because we have exhausted everyone and same test which always come out normal. She has extreme weakness and at times can’t even walk.
Replies to "My name is Beverly and I decided to do some reading on Mayo Clinic as were..."
Welcome Beverly. A Mayo movement disorder neurologist dxd me with Mild Parkinson Syndrome a year ago. He said i didnt need meds
But must exercise. However I had tight hamstrings past few months so my local neurologist had me try Sinemet. I had stomach issues with it. So he said to stop. He suggested Neupro Patch. I'm on my 19th day. No side effects and no tight hamstrings. I do PEADLING FOR PARKINSON at fitness center. This is a great site.
Hi Beverly,
The first thing, of course, is a good diagnosis. I saw various doctors for years with one symptom or another before a new PA diagnosed me and sent me along to Neuro for confirmation. While the diagnosis was scary, it was nice to tie up all the loose ends
into one thing I could understand and that could be treated. Theresa can help walk you through that part. The rest of us will be around to put in our 2 cents worth about our experiences.
Steve
@ggopher Hello Steve,
Thanks for your post to Beverly, @beverlyann. Yes there are often many pieces that need to be put together in order to have a DX of Parkinson's. I appreciate that insight.
Teresa
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@beverlyann Hello Beverly and welcome to Mayo Connect.
How wonderful that you are advocating for your mother. You mention that she shakes and at times can't walk. You also mention that the same test comes out normal. If you are comfortable sharing more could you please share what test(s) she has had? Also, has she seen a movement disorder specialist (they are neuroloigists who specialize in disorders like Parkinson's). Does your mother have other health problems that have been addressed?
Most of us went several years before we received a PD DX. It can sometimes be confused with other health disorders. Here is some information from Mayo's website about PD, https://www.mayoclinic.org/diseases-conditions/parkinsons-disease/symptoms-causes/syc-20376055. As you read this you will learn some more about this disorder.
We look forward to getting to know you better and encouraging and supporting you at this time. I would like to introduce you to some other members who have been diagnosed with PD. I'm sure they would like to welcome you as well, please meet Marie @mariemarie, Steve @ggopher and Steve @lsdemspey.
Teresa