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Anyone with PV and LOW Iron levels?

Blood Cancers & Disorders | Last Active: 1 day ago | Replies (6)
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@nypara66

Do you have PV?How was your hemoglobin? I was told previously I can’t take iron b/c it’ll raise my labs and need more phlebotomies? Still awaiting my call back.

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Replies to "Do you have PV?How was your hemoglobin? I was told previously I can’t take iron b/c..."
rmegg | @rmegg | 1 day ago

I have PV. My haemoglobin is always on the way up! However the iron depletion was so severe that I had an infusion. Not recommended for PV. I monitor my iron and PV together and commenced pills when my iron depletion again became severe. The side effects of iron depletion are just as bad as PV. Together fatigue becomes a really terrible problem. But iron depletion caused my whole body to go dry. hair loss and my scalp to be a total mess!
So try not to get to that point. I have phlebotomies as needed, sometimes 4weeks apart, or
a little longer. Good luck

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