Connect
← Return to Living with Parkinson's Disease - Meet others & come say hi
Discussion
Living with Parkinson's Disease - Meet others & come say hi
Parkinson's Disease | Last Active: May 1, 2023 | Replies (471)Comment receiving replies
@david59 Cheers it is! I'm pleased that you found a way to circumvent your mobility issues with good fitting shoes, that is great. With regards to "freezing" I have attended a lot of PD seminars and I heard a suggestion that if you find yourself "freezing" at a doorway or when you are next in line at a store, take a step backwards and then you will more easily go forward. I'd like to ask our other PD members about their experiences with freezing, @chrisj2491 @denie57 @johnjames @trouble4343 @ggopher @tntredhead @aperob @caryp43 @burgle @macbeth @knightkris @mariemarie @pjsammy @techi @sandycerem. Have any of you found any help with the freezing phenomenon? Teresa
Replies to "@david59 Cheers it is! I'm pleased that you found a way to circumvent your mobility issues..."
Hello @techi While I'm not a medical professional I can only give you some information from my research. Here is a website from Mayo that lists different tests that are done to diagnose MS, http://www.mayoclinic.org/diseases-conditions/multiple-sclerosis/diagnosis-treatment/diagnosis/dxc-20131901 Did you have a brain MRI or lumbar puncture tests?
With regards to diagnosing Parkinson's, here is information from Mayo's website that explains how Parkinson's is diagnosed. The diagnosis for Parkinson's is not as clear-cut as the method to diagnose MS, http://www.mayoclinic.org/diseases-conditions/parkinsons-disease/basics/tests-diagnosis/con-20028488
Did a neurologist diagnose you with these disorders? Are you being treated with meds now? How are you feeling? Teresa
I was just told from the nurse at the Mayo clinic I need to have a ultrasound of my liver. Because I had several extra veins in my liver. My doctor wanted that done in 2015 before my surgery and it wasn't done. And my neurologist said she is going to do a pep test if that comes back normal then they will have to be trained to not fall out when I know I am going to fall. That seems a little crazy because I don't always know. So I'm still just a little confused.
@techi I am sorry to hear about the confusing messages. Do you have someone (family member or friend) who can talk with your doctor or nurse on your behalf and then explain to you what is happening? Teresa
Im just waiting until i have these test done. I have to call tbe rheumatolgist she wanted to see me also. I'm just a rare case and at least the mayo clinic is doing more for me then i have been getting for years. I was amazed at the first day i saw the internal medicine doctor she setup so many appointments and they drew 19 tubes of blood in one day. And this last time they ruled out alot of things. So we will see what's next.
@techi I am glad to hear that you are at Mayo and getting such good care. Please keep in touch with us and let us know how you are doing. Is your next test scheduled sometime soon? Teresa
Connect
I just want to know the differences of parkinson disease and ms
I've been diagnosed by two neurologist that l might have ms or parkinson disease. I don't know if their are smilarities or if its a diagnoses you can't completely diagnose. But l truly believe l don't have either one. So l just want to know if anyone can explain the differences and how it's diagnosed. Thank you