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Started Carbidopa/Levodopa Today
Parkinson's Disease | Last Active: May 3 8:43pm | Replies (47)Comment receiving replies
I just found this group. My husband has been having a lot of Parkinson's symptoms, though he has not been formally diagnosed with Parkinson's. He's had a lot of tests, and they have sent his records and blood samples to Mayo clinic. No one so far has decided what it is. However, he is on carbidopa/levodopa and he seems to do better when he's on it, so he is continuing. We have been waiting to get into a new neurologist for months now. His appointment was supposed to have been last week, but his neurologist decided to leave that practice, and they are trying to get him in with someone else. I decided to try and find out as much as possible about PD - since, even if that's not what he has, he shares a lot of the same problems with those who do. His mobility is getting worse and worse, and I'm really afraid of what is coming. He was given exercises to do every morning, but I suspect that he should be doing more. It sounds like a lot of you who have had diagnoses for quite awhile are doing better than he is. Anyhow, just wanted to say, "Hi."
Replies to "I just found this group. My husband has been having a lot of Parkinson's symptoms, though..."
Hi. My Mom was diagnosed Aug 2023 and boy did we have a horrible time getting diagnosed. I have honestly cried just about everyday since. She lives with me and I see her declining daily. Not to be negative but this disease is dreaded. I’m so sorry. Mom has really declined significantly in these last couple years. I just got her into rocksteady boxing for PD patients and she hates it. The carbo/leva makes her sleepy and she takes it 4 times per day and sleeps a lot now. Her dreams are so vivid and often very scary as she screams and cries. I mean like horrific screams. She has fallen so many times. Broken back, fractured hip and hit her head so many times. It breaks my heart into to witness this. But I know God has a plan and doesn’t make mistakes.
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My husband was diagnosed 5 years ago. The best things for him in addition to his meds are regular exercise, Parkinson’s boxing (where in addition to the exercise he meets others dealing with the same issues), occasional PT with a Parkinsons specialist and a monthly massage. It’s a tough diagnosis but there is help out there. I wish you both well.