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@notagoodfeeling

I was just diagnosed with PMR about 4 months ago and started 30 mg of prednisone. Took my pain all away. After about 1 month my Dr suggested reducing it, down 5 mg at a time for a month at a time. I noticed a small amount of pain started even with the first decrease but thought maybe it would go away once I got adjusted. Got down to 15 mg for a week and couldn't stand the pain so I increased back up to 20 mg for another week and the pain just kept increasing. I went up again to 25 and still had pain every day. Now, I'm back to 30mg right where I started!! So frustrating!! My pain hasn't gone away yet but it seems to be somewhat better. If I do too much one day because I'm feeling better, then I certainly pay for it the next day!!! I feel like my body is going to blow up from the swelling, weight gain etc from the prednisone!! I can't wait to get off this crap but I also don't want the pain. My Dr. says we need to be slower on the reduction, either time wise or amount wise, instead of 5 mg at a time then we might have to reduce at 2 or 2.5 mg at a time. At that rate it seems it's going to take quite a while to get off it, not really what I wanted but do we ever have a choice?

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Replies to "I was just diagnosed with PMR about 4 months ago and started 30 mg of prednisone...."

Welcome @notagoodfeeling, I sense a tiny bit of humor in the member name you chose and can definitely relate to PMR not being a good feeling. What helped me during the tapering process for both time my PMR was active was to keep a daily log of my level of pain when I woke up and my dose of prednisone for the day. Then when it was time to taper to the next lower dose I used my level of pain as my do I taper down or go back up a little based on my level of pain that I felt was tolerable. For me that was a 2 or less on a scale of 0 to 10. On the times my pain was higher than 2 and it was time to try to taper down, I waited a day or two to see if the pain was less and if not I bumped the dose up half of what I previously tapered down to see if it made the pain go away or if I had to go back to the previous higher dose.
Took me 3 and half years the first time around to taper off and 1 and half years the second time.

Do you keep a daily log of how you feel?