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CIDP and concerns about treatment risk factors

Neuropathy | Last Active: May 5 6:26am | Replies (22)

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Profile picture for crnelson @crnelson

I was on IgIv for approximately 2 years. The only thing I noticed that it helped was with the electrical shock feelings of pain. For that I am grateful. I then went on Corticosteroid for 12 weeks. I didn't see any improvement. Then I had two rounds of Rituximab chemo. I go back to my team of doctors at the Mayo Clinic the end of May. Hoping that they will advise me as to what I can do next.

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Replies to "I was on IgIv for approximately 2 years. The only thing I noticed that it helped..."

Thank you for sharing your journey; I hope they find a solution for you when you go back. With my symptons I am experiencing weakness in legs, core & arms. I have numb sensation in my right outer leg and also have foot drop, so that poses additional risk of falling. I start the IgIv within the next two weeks and am praying to get some relief and strength back. Best of luck in May and I'll check in on you to see how it went.