Let’s have a chat about what if anything works to improve your life wi
Many if not all of us with idiopathic neuropathy have seen hundreds if not thousands of Dr’s for our neuropathy. So what really has improved your life? Be specific to help all. There are more companies selling us crap that they claim will help. Seems an honest discussion about what really has impact is needed. For me, I have stopped seeing specialist as it has not proven successful. Still see GP for Gabapentin RX.
So let’s get into the reality of what is working. For me it is not seeing more Dr’s. So let’s help each other with what has really worked for you so we can all learn. Maybe we can find some comfort for all.
Interested in more discussions like this? Go to the Neuropathy Support Group.
Neuropathy can wear you out, that's for sure. One neuro doc told me that when you have things to do, try to get them done in the morning. As the day moves on, PN is tiring. Things involving activity I do in the morning and less active things later in the afternoon. Works for me.
I agree 100%, night time is usually the worst time of day for me. I used to love spending the evenings with my wife, watching something interesting, or something that won't insult our intelligence on TV. Now it's watching the clock to see when it's time to take my pills, which means getting out of my chair and walking to the bathroom at 8 pm, 9pm, and 10pm.
The pain in my joints and feet is always worse than it was earlier in the day.
I ran into this AD on TV this morning and thought I would share it with the group. Has anyone in our group tried this formula? I see it has alpha lipoic acid, a product I use religiously every day along with 12 supplements. Plus I take 6 Tylenol 8HR Arthritis pills in 24 hours for pain. If I could add all the proprieties of 12 supplements into 2 tablets of Nerve Support, that would be amazing. But I’m not ready to jump on this wagon yet. The reviews are good but I need to do my homework. I look forward to all the input you may have to offer. Hugs, CB
https://www.advancedbionutritionals.com/Products/Health-Concerns/Nerve-Support.htm
"Advanced Nerve Support provides nutritional support for your nerves with a 5-in-1 formula that includes benfotiamine, methlycobalamin, alpha lipoic acid, B6 and acetyl l-carinitine".
I agree the doctors are not giving us any hope whatsoever I can’t believe that we don’t have a care for neuropathy, but we can go to the moon blows my mind if anybody finds any cure for neuropathy, please post thank you
Trying to stay easily amused. I've had a couple a back surgeries. Last was really nasty. So I've become part-time homeless. When I'm on the streets, or as I call it in the ruff. I have no choice but to get up n go where I have to n get some things done. Ummm like eating.
I've found keeping my weight down and no sugar with trips to the gym.
Planet Fitness has free membership- black card. There's massage chair and bed.
Also others to talk to and try n stay out of my head.
That place can su#k. I gave up on the pain killers.
A neurologist told me that it was the Gabapentin and drugs in that class that gave me muscle tremors.
I've had 2 heart attacks, brain surgery, 2 back surgeries,2 ACL repairs and more procedures and you can shake a stick at.
66 yr old male on way not enough Social Security.
I've lost most all I use to own. No transportation.
Well that's enough of that.
I also know I can ruin this day if I only just try.
And don't even get me started on allergies.
Live in San Diego and just trying to do better.
Well nothing butt love LOL
I tried many if not all of the vitamin and supplement “solutions” for two years post EMG confirming idiopathic PN.
No solution for me. My B-12 did go up it was normal range low.
I would get other opinions if it is expensive. There are so many scams out there because the scammers know we will pay $ for any possible relief.
I do use a tens like device and that has help with symptoms. It relieves the PN nerve buzz.
IMO if if were as easy as taking a few pills probably would not need this blog. But maybe try it with guarded expectations.
Best MC
Go Padres
Yup yup yup BTW when do we go after LA??
Can you tell me what symptoms you have? I have fuzzy feeling in fingers and feet from chemo treatments. Looking for something to help with that fuzzy numb feeling. Thank you so much!
Me, too. But then I've always been an early morning person anyhow. Our bodies talk to us. We need to listen to what, where, when, and how. The afternoons are not good for me. By that time, the pain has taken hold of me.