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Wild-type ATTR Amyloidosis (ATTRwt): What meds help you?

Blood Cancers & Disorders | Last Active: Sep 4 12:50am | Replies (24)
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Profile picture for phillipdobrien @phillipdobrien

Thank you for your input. I will share it with my health care team & hopefully find out what if anything needs to be our next step. Hope all is well with you & yours !

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markwithwildattr | @markwithwildattr | Apr 26 10:32pm

I am currently taking Attruby (acoramadis,712 mg a day for life) which was approved for ATTR in November of 2024, It has a higher success rate than Trafamidis which was the previous drug to treat the disease. I am also in the process of entering a clinical trial (Crispr Cas 9) which is a one time infusion to stop the production of the misfolded proteins created in the liver. If this is successful, it will be a revolutionary treatment for the disease.

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