← Return to Living with Parkinson's Disease - Meet others & come say hi

Discussion
Comment receiving replies
Profile picture for knightkris @knightkris

Thank you for your reply.

I have a mild tremor in my right hand only I am taking meds. Levo Carb. It is helping out. It is a you stated, frustrating. The one thing that I did do at the start was to get a second opinion. didn't believe it myself. I never thought about Physical therapy for PD. No one suggested this to me. I will have to have the doctor refer me to this. I will have to look for a support group. This has been suggested to me, but I never did anything about it. Now is the time to do this.

I haven't reached out to anyone. As I am strong and can do everything myself NOT.

Thank you for getting back to me so quickly.

Kris

Jump to this post


Replies to "Thank you for your reply. I have a mild tremor in my right hand only I..."

Yes, it comes as a shock to PD patients to find that they must be their own advocates. Not all of us are temperamentally suited to stare down the doctor as he's about to bolt for his next patient to ask about recommendations for exercise, or PT, or speech therapy. But you should. Britain's National Health Service by comparison encourages an immediate team approach to PD care. Collegiality best benefits the patient. (cf. NICE Guidelines)

@knightkris In some states they have Parkinson programs at the YMCA. Get in touch with your local Parkinsons Association. Look for Podcasts from the Parkinson Association after you join. You will be able to get some infomation to help understand the symptoms and maybe help you and your loved ones to understand Parkinsons. mayoconnect is a great resource. Having three family members with Parkinsons has encouraged me to learn as much as possible. 🫂💕