Insurance coverage for Actemra infusion with straight Medicare?

Posted by linda7 @linda7, 5 days ago

I have had PMR for 4 years, have tried methotrexate and Kevzara but am now on just prednisone. I went off Kevzara due to cost. It was providing some benefit, but was less effective as time went on, plus there were worrisome side effects. Going off the Kevzara has caused a flare-up and I've had to increase prednisone from 5 to 7 mg and still have a fair amount of pain. My rheumie now thinks I probably have GCA as well as PMR and has ordered Actemra infusions. I received a cost estimate of $4500 a month. I was told that it is my job to find out if insurance will cover it. They will bill the whole amount to Medicare, though I also have part D. I have not called Medicare yet, dreading the stress after going through all this with Kevzara. I was told that theoretically Medicare should cover it. I would like to know if anyone in this group has actually had straight Medicare cover Actemra infusions. Thanks for any help on this.

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@ropnrose

I was diagnosed with PMR/GCA in July 2024. Started on 60 mg. of prednisone. In early December, I had tapered to 10 mg. Major flare during the holidays and all my initial PMR/GCA symptoms returned. In early January, my inflammatory markers were high. I asked my rheumatologist to order Actemra infusions. Initially, she wanted to order Kevzara, but my Part D insurance doesn't cover it. She ordered the infusions and I get them every 4 weeks. I have had a huge improvement in my health.

To answer your question, Medicare will pay for infusions because they are administered in a 'medical setting'. Medicare had to approve the order, but it only took a week or so. I was getting my infusions at an infusion center in Florida and they were $2600 per dose. If you go the self injection route, you have to deal with Part D and the possible co-pays that come with that.

Ask your rheumie to order Actemra. I don't think you need to chase this down. PMR is stressful enough. You don't need the additional stress in trying to get an answer from someone on the phone (if they even answer the phone).

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Thanks to you and to others who have answered. I now am fairly confident that Medicare will cover the Tyenne ( Actemra biosimilar) infusions. The order was put in and they called me to schedule but I held off because of my doubts. I'm going to wait until my next lab draw and MD visit in about a month. That way I'll have a good baseline on the labs since the Kevzara I recently got off had caused some abnormalities.

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@linda7

Thanks to you and to others who have answered. I now am fairly confident that Medicare will cover the Tyenne ( Actemra biosimilar) infusions. The order was put in and they called me to schedule but I held off because of my doubts. I'm going to wait until my next lab draw and MD visit in about a month. That way I'll have a good baseline on the labs since the Kevzara I recently got off had caused some abnormalities.

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"That way I'll have a good baseline on the labs since the Kevzara I recently got off had caused some abnormalities."
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Actemra might cause the same abnormalities. However, the dose of my Actemra infusion was easy to adjust, I'm in the low range of the normal infusion dose and I don't have the lab abnormalities that occurred with my fixed doses of my Actemra injections. I had to hold a dose or two when I did Actemra injections.

That is a huge advantage to doing infusions. My labs are monitored by my rheumatologist and he knows exactly when my infusion is done and the dose I get. My rheumatologist seems to know how long I can go between infusions. He says my inflammtion markers start to increase again when I go more than 6 weeks between infusions.

Mostly I do an infusion every 4 weeks but I feel like it can be stretched to 6 weeks. My rheumatologist says not more than 6 weeks between infusions.

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Hello, In regards to your doctor office saying it’s up to yo to find out if Medicare covers your Actemra infusions seems strange to me. Recently my rheumatologist put me on Kevzara but said it would take a couple weeks to for insurance approval. After a couple weeks the special pharmacy called and said it was approved. All this to say that I can’t remember when either myself or my wife had been told it was up to us to get the prior approval for anything medical . We have 8 grown children, so that’s a lot of approvals.
In 2025 the Medicare deductible max was lowered to $2000. Considerably less than before….. Hope the best for you.

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@grumpa

Hello, In regards to your doctor office saying it’s up to yo to find out if Medicare covers your Actemra infusions seems strange to me. Recently my rheumatologist put me on Kevzara but said it would take a couple weeks to for insurance approval. After a couple weeks the special pharmacy called and said it was approved. All this to say that I can’t remember when either myself or my wife had been told it was up to us to get the prior approval for anything medical . We have 8 grown children, so that’s a lot of approvals.
In 2025 the Medicare deductible max was lowered to $2000. Considerably less than before….. Hope the best for you.

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I agree that it is up to the doctor to get approval. I have Medicare Advantage, and I called them to ask about the process for getting Actemra approved. They said the doctor had to request it. I saw my rheumatologist on Friday, and I mentioned that I needed to have the Actemra approved again in August. She said to remind her in early July to request the approval, and acted like it isn't a big deal.

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@grumpa

Hello, In regards to your doctor office saying it’s up to yo to find out if Medicare covers your Actemra infusions seems strange to me. Recently my rheumatologist put me on Kevzara but said it would take a couple weeks to for insurance approval. After a couple weeks the special pharmacy called and said it was approved. All this to say that I can’t remember when either myself or my wife had been told it was up to us to get the prior approval for anything medical . We have 8 grown children, so that’s a lot of approvals.
In 2025 the Medicare deductible max was lowered to $2000. Considerably less than before….. Hope the best for you.

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It's slightly complicated. I chose to have straight Medicare rather than an Advantage plan for several reasons. I worked as a P.T. for 25 years and I saw how poorly patients were often treated by advantage plans. They are for-profit companies trying to do everything the cheapest way, with networks of preferred providers, limitations on out-of-local area coverage, ability to deny coverage, etc. You have less choice in many cases. I know they work out for a lot of people. I am in favor of single payor non-profit medical care, so I'm walking my talk with my choice. In the case of the infusion, I don't have to wait for authorization because there is no pre-authorization but the doctor has to use the correct code to get it covered. If it is a covered Medicare item there is no chance for denial. This is the first expensive item I have needed so I asked for an estimate of cost in case I somehow ended up getting billed. The billing people are just covering their butts when they told me they can't make any guarantees about what insurers will do. It turned out the doctor coded it correctly, I didn't need to worry about it. If I had less knowledge and experience I probably wouldn't have worried about it.

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@linda7

It's slightly complicated. I chose to have straight Medicare rather than an Advantage plan for several reasons. I worked as a P.T. for 25 years and I saw how poorly patients were often treated by advantage plans. They are for-profit companies trying to do everything the cheapest way, with networks of preferred providers, limitations on out-of-local area coverage, ability to deny coverage, etc. You have less choice in many cases. I know they work out for a lot of people. I am in favor of single payor non-profit medical care, so I'm walking my talk with my choice. In the case of the infusion, I don't have to wait for authorization because there is no pre-authorization but the doctor has to use the correct code to get it covered. If it is a covered Medicare item there is no chance for denial. This is the first expensive item I have needed so I asked for an estimate of cost in case I somehow ended up getting billed. The billing people are just covering their butts when they told me they can't make any guarantees about what insurers will do. It turned out the doctor coded it correctly, I didn't need to worry about it. If I had less knowledge and experience I probably wouldn't have worried about it.

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Do you have a Medicare Supplement? It adds to the cost of your insurance but a supplement decreases what you have to pay your health care provider? Medicare only pays for 80% of the hospital costs.

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@dadcue

Do you have a Medicare Supplement? It adds to the cost of your insurance but a supplement decreases what you have to pay your health care provider? Medicare only pays for 80% of the hospital costs.

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Yes I have a supplement.

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@grumpa

Hello, In regards to your doctor office saying it’s up to yo to find out if Medicare covers your Actemra infusions seems strange to me. Recently my rheumatologist put me on Kevzara but said it would take a couple weeks to for insurance approval. After a couple weeks the special pharmacy called and said it was approved. All this to say that I can’t remember when either myself or my wife had been told it was up to us to get the prior approval for anything medical . We have 8 grown children, so that’s a lot of approvals.
In 2025 the Medicare deductible max was lowered to $2000. Considerably less than before….. Hope the best for you.

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Very unusual that your doctors office comments like this. They want you for a patient, they want to treat you, they want to get paid or reimbursed for their services and yet they don’t assist with a pharmacy consult to see if the drug interacts with anything you are taking and in the pharmacy consult they can tell you what insurance covers your copay etc etc. ask for a pharmacy consult specific to rheumatoid issues if possible. My rheumatologist does this with every new medication I try. Part of the serve and there should be no charge for this.

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@randersonccc

Very unusual that your doctors office comments like this. They want you for a patient, they want to treat you, they want to get paid or reimbursed for their services and yet they don’t assist with a pharmacy consult to see if the drug interacts with anything you are taking and in the pharmacy consult they can tell you what insurance covers your copay etc etc. ask for a pharmacy consult specific to rheumatoid issues if possible. My rheumatologist does this with every new medication I try. Part of the serve and there should be no charge for this.

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Thanks for your comment. I agree that my doctor's office was not very helpful in figuring out payment issues. The billing people did tell me that they would bill Medicare for the whole amount of the infusion and not part D. I had a problem with my private profit-based part D insurance not covering Kevzara. I have been healthy at age 75 up until PMR and am still learning the Medicare (straight Medicare not Advantage) system as a patient. I've never had an infusion so don't know if a pharmacist gets involved. I'm glad I held off on starting the infusion. The comments here and my research have helped me to formulate questions to ask my doctor at the next visit before I make a final decision on the Tyenne ( biosimilar Actemra).

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@linda7

Thanks to you and to others who have answered. I now am fairly confident that Medicare will cover the Tyenne ( Actemra biosimilar) infusions. The order was put in and they called me to schedule but I held off because of my doubts. I'm going to wait until my next lab draw and MD visit in about a month. That way I'll have a good baseline on the labs since the Kevzara I recently got off had caused some abnormalities.

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I am currently on Tyenne and tapering off Prednisone. I was given the choice by my Dr. to either come in once a month for an infusion or do a weekly injection myself. My copay through my insurance (not medicare) is $30.00 a month. I have had NO side effects with Tyenne and it has been working wonders for me. I wasn't able to get below 30mg of Pred without pain. I am starting my 3rd month of Tyenne and I'm down to 17.5 mg and Friday I will drop to 15mg. My Dr had me go 30,25,20,17.5 every 2 weeks. Good Luck & hope it works for you!

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