I would hope that all of us with CLL have had either a chromosome test or a BMB. My chromosome test showed the deletion I have is associated with a good prognosis. Now, with 3 years of blood tests, my WBC count and lymphocytes are stable so watchful waiting is indeed appropriate for me.
in 2010 my husband had an oncologist that said. no symptoms stage 0 we will watch and wait too, I happened to come across a team of Oncologist specializing in thyroid cancer on line, one Physician said never watch and wait, so I did more research, left Virginia and flew to Houston Texas Anderson MD Cancer Center, they could not believe I was not referred as my husband was really healthy looking and still working, but they seen us anyway, Miracle number 1, took lots of blood, we spent the night there and next day, they said bad news, good news , your husband has less than one year to live, his markers indicate he is asymptomatic and cancer chronic lymphatic leukemia is aggressive marker 17 and 53, that same day the target chemo had just been approved by the FDA, my husband was one of the first patients outside the trial to start on it, he was able to stay on it 6 years before his body rejected it, but they started a new target chemo and after 3 years he was cancer free over 3 years, then in January this year CLL showed up again, he just started back on new treatment, his platelets really low at 69,000 , and many many enlarged lymph nodes, bottom line, never wait and see, wishing you the best, Oh and ask for a more in depth blood panel that detects any abnormal markers. Best Wishes to you.
Hello, thank you for sharing your experience. I am newly diagnosed and have my appointment on Monday to get full details on my labs and what I am dealing with. I have had ET for 2.5 years and now this. What are the markers you are referring to? Trying to learn to navigate this and add to my list of questions for my Dr.
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I would hope that all of us with CLL have had either a chromosome test or a BMB. My chromosome test showed the deletion I have is associated with a good prognosis. Now, with 3 years of blood tests, my WBC count and lymphocytes are stable so watchful waiting is indeed appropriate for me.
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2 ReactionsHello, thank you for sharing your experience. I am newly diagnosed and have my appointment on Monday to get full details on my labs and what I am dealing with. I have had ET for 2.5 years and now this. What are the markers you are referring to? Trying to learn to navigate this and add to my list of questions for my Dr.
Thank you!