What is the survival rate for 65 yr Male w/ squamous cell carcinoma

Posted by sapooh75633 @sapooh75633, 3 days ago

My husband was diagnosed in November of 2022 with left tongue squamous cell carcinoma. He had a partial glossectomy. He was doing great then in last of March he had a lump on his neck and had a PET scan and they discovered the following:
There is a
2.2 cm hypermetabolic lesion in the. left lateral neck at the level of C1-C2 on
image 59 with SUV 5.9. Exact measurement of the lesion is difficult due to
continuity with the surrounding musculature. No additional cervical sites of
increased FDG activity. Postsurgical changes of prior left neck dissection are
noted.
Now we are waiting to find out if they are going to do a surgical biopsy or radiation. What should I be asking and or advocating for my husband. We have been told to try ivermectin as a treatment for cancer, is this a viable solution?

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@sapooh75633, this must've come as a blow for you and your husband.

Claims about ivermectin have been circulating a lot in the news and on social media for the past few years now. Always check the source of information your find and make sure it is coming from a trusted, evidence-based medical source. Ivermectin is not a proven standard treatment for cancer.

While pre-clinical trials (mice studies) show promise, the use of ivermectin alone for cancer control in humans has not yet been tested in human trials. Researchers are actively studying the use of ivermectin in combination with other drugs.
Important
It is NOT safe to take ivermectin used in veterinary medicine.

You ask about questions to ask your husband's team as you prepare for your upcoming appointment. I might start with:
What are our treatment options?
What are the benefits and side effects of each?
Can a palliative care team help manage side effects?
What complementary or integrative treatments might help with treatment and/or side effects?
Are there clinical trials that my husband might be eligible to take part in?

Back to you, @sapooh75633. How are YOU doing?

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My knowledge is dated as it's been 19 years since my experience, and they have come a long way since then. Survival rate depends upon how quickly the cancer is found, the stage it's at, and what is the cause. It used to be that it was mostly older smokers and drinkers experienced cancer in the neck. HPV appears to have changed that. It sounds like your husband has remained vigilant. Depending on the stage and the reason for his cancer, the survival rate is relatively high, 70-90%. It was not determined the cause for my cancer. I had detected it early, though by then it had spread to the lymph nodes, and I was at stage IV. There is always hope.

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I’m a stage IV survivor of 8 1/2 years, there’s always hope of recovery!
Don’t get discouraged when you find 5 year survival rate….they log 5 years because usually you don’t need to see the oncology team after 5 years hence no further record.
Now, are we all back to normal? Some are but as for me I had to stay on disability and not able to return to work, but I am alive at nearly 63.
Wishing you the best
MOJO

PS I wouldn’t try methods of treatment without discussing them with your oncology team!

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@56tburd

My knowledge is dated as it's been 19 years since my experience, and they have come a long way since then. Survival rate depends upon how quickly the cancer is found, the stage it's at, and what is the cause. It used to be that it was mostly older smokers and drinkers experienced cancer in the neck. HPV appears to have changed that. It sounds like your husband has remained vigilant. Depending on the stage and the reason for his cancer, the survival rate is relatively high, 70-90%. It was not determined the cause for my cancer. I had detected it early, though by then it had spread to the lymph nodes, and I was at stage IV. There is always hope.

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Thank you that is encouraging, we did get a call today they are scheduling a surgical biopsy, on 5/6 and setting up radiology and chemotherapy. I am a little confused because we do not have any results from the biopsy yet as it has not been done, so not sure why they have already scheduled his radiation and chemotherapy. They told him to get any dental issues taken care of asap because the treatment could cause severe jawbone issues....I am believing in God to take care of us and I am trying to trust our oncologist, he has taught at Harvard in this field...

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@colleenyoung

@sapooh75633, this must've come as a blow for you and your husband.

Claims about ivermectin have been circulating a lot in the news and on social media for the past few years now. Always check the source of information your find and make sure it is coming from a trusted, evidence-based medical source. Ivermectin is not a proven standard treatment for cancer.

While pre-clinical trials (mice studies) show promise, the use of ivermectin alone for cancer control in humans has not yet been tested in human trials. Researchers are actively studying the use of ivermectin in combination with other drugs.
Important
It is NOT safe to take ivermectin used in veterinary medicine.

You ask about questions to ask your husband's team as you prepare for your upcoming appointment. I might start with:
What are our treatment options?
What are the benefits and side effects of each?
Can a palliative care team help manage side effects?
What complementary or integrative treatments might help with treatment and/or side effects?
Are there clinical trials that my husband might be eligible to take part in?

Back to you, @sapooh75633. How are YOU doing?

Jump to this post

Thank you for the information, and direction. I will ask his team your suggested questions. We are absolutely grasping for every straw and hope. We are ministers and have a strong faith in God and His miraculous healing power. We also know He opens doors and gives the medical world wisdom and talent to treat the sick. I am trying to stay optimistic, my husband and I have been together for almost 51 years, we met when I was 12 and he was 13 he is the absolute love of my life, every breath I take. I cannot imagine a moment of my life without him in it. I lost my dad when I was 8 and understand loss from a very young age, it has been my greatest fear to lose him, so that is not an option....we are going to get through this and enjoy a long happy future.

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@sapooh75633

Thank you that is encouraging, we did get a call today they are scheduling a surgical biopsy, on 5/6 and setting up radiology and chemotherapy. I am a little confused because we do not have any results from the biopsy yet as it has not been done, so not sure why they have already scheduled his radiation and chemotherapy. They told him to get any dental issues taken care of asap because the treatment could cause severe jawbone issues....I am believing in God to take care of us and I am trying to trust our oncologist, he has taught at Harvard in this field...

Jump to this post

Hello @sapooh75633. If this biopsy does not show the same or a new cancer then they may just cancel the treatment. The doctors must play the odds until a definitive diagnosis is made. I am into my 14th year with SCC, though mine started in my ear, not tongue. There are many newer treatments, immunotherapies, and procedures even since my diagnosis in 2012. These are the things that will keep your husband fighting this cancer and winning. Sometimes winning just means controlling the cancer, not eradicating it. For information into complementary therapies that have some research behind them, try the book The Rebel's Apothecary by Jennifer Sansouci to learn about medicinal mushrooms. Research Beta Glucan for supporting the immune system. Look at Dr. Ed Creagan's book How Not to Be My Patient for ways to change your diet and lifestyle to help in the cancer fight. Above all, always have hope and find the positive in each day. Take care of yourself too.

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I was 65 when I began radiation and chemo treatment for SCC on the base of my tongue and a couple of lymph nodes. Here it is 4 years and a half years later and so far, no sign of a recurrence.

I would ask you care team for this info as they know more about your case and other factors.

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I just got my diagnosis Biopsy scheduled for May 8. After that they will tell me if robotic surgery is on the menu. Question: they tell me that the chemo/radiation is six weeks long. Could someone share that experience with me?

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@bupster

I just got my diagnosis Biopsy scheduled for May 8. After that they will tell me if robotic surgery is on the menu. Question: they tell me that the chemo/radiation is six weeks long. Could someone share that experience with me?

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Hi @bupster Welcome to our group. There are many discussions in this group going back years where patients talk about their experience with radiation and chemo. Certainly your normal daily life comes to a halt. You will spend your days and weeks fighting the cancer because in the end, nothing else will really matter if you don’t fight this.
However, you have not had a diagnosis yet so how do you know you have cancer? Let’s take it one step at a time.

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@hrhwilliam

Hi @bupster Welcome to our group. There are many discussions in this group going back years where patients talk about their experience with radiation and chemo. Certainly your normal daily life comes to a halt. You will spend your days and weeks fighting the cancer because in the end, nothing else will really matter if you don’t fight this.
However, you have not had a diagnosis yet so how do you know you have cancer? Let’s take it one step at a time.

Jump to this post

Thank you very much for your reply, I guess???? I have my diagnosis from Dr, Kansara at Mary Bird Perkins Cancer Hospital. I have had Two scopes to confirm and catscan
Now can you please answer my question

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