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Sarcoid and prednisone
Recently diagnosed with sarcoidosis. Lungs and lymphnoid abnomen and spleen. Good I know if it’s anywhere else. Would it have showed in pet scan? PREDISONE is hell. Any alternative to recommend. I was in 40 now 20 and I feel
Like I’m
Going crazy. Should I be worried this is going to kill Me since it’s in my lymph system a well as
Lungs. Really scared. It’s ruining my life.
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@klgs Welcome to Mayo Clinic Connect! I’m glad you found the site. Patients, families, and medical persons share information about their medical experience. I’m sure you’ll like everything!
I’ve included Mayo Clinic’s information on sarcoidosis. Please try not to worry about prednisone. I’ve been on it
https://www.mayoclinic.org/diseases-conditions/sarcoidosis/symptoms-causes/syc-20350358
for 6+ years now and am doing well . It is usually the first line of defense for autoimmune diseases. One thing, ask your physician for a referral for a DEXA scan (a specialized x-ray of your hip bones). It will give you a baseline of your bone health since prednisone is known to cause osteoporosis.
We’ll let other members who have sarcoidosis get in on the discussion to answer all your questions. Here is a good discussion for you:
https://connect.mayoclinic.org/discussion/anyone-with-diagnosis-of-sarcoidosis/.
Can you tell me how you learned about Mayo Clinic Connect?