Replies to Thank you Ray. I too have a similar diagnosis of large fiber poly neuropathy. Ive noted…

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Neuropathy | Last Active: Apr 27 8:52am | Replies (28)

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@cap5457

Thank you Ray. I too have a similar diagnosis of large fiber poly neuropathy. Ive noted some disturbing balance issues lately. But I’m continuing to push forward. Now that I recognize this issue I’m more alert to my surroundings. Not going to let it interrupt my daily activities though. Good luck.

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Replies to "Thank you Ray. I too have a similar diagnosis of large fiber poly neuropathy. Ive noted..."

Ray Kemble | @ray666 | Apr 24 7:48pm

I think that's the answer: Don't let PN interupt your dail activities, no more than is necessary to stay safe. Because I'm dealing with only balance issues (no pain, at least not so far), in my early post-diagnsis months I found myself passing up all sorts of activities, from the somewhat more challenging, like an evening's dinner date with friends (host's house = 'hostile' territory! :-), to the simple and routine, like going down the front walk to fetch the morning newspaper. Finally, I had to have a meeting with myself: 'Come on, Ray, these are things you can do, if you really want to. You can do them safely. Just go step by step. If it looks too dangerous … well, maybe next month.'

Cheers!
Ray (@ray666)

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