I had my infusion in June 2024….Some 10 months ago. I saw my endocrinologist in November and shared my experiences and on going issues; nauseated, exhausted, pain in both shoulders and pain in the bottom of my left foot. He shared that these things that I am experiencing has nothing to do with the infusion and recommend physical therapy and for me to see a neurologist. Well, I have been doing physical therapy and still going. Seeing a neurologist required a referral from my primary, who did not see the need. Ten months later I’m called to come into the endocrinologist office for a consultation with their pharmacist. In doing so, it was expressed that they wanted to give me a different medication that would be in the form of a shot instead of the infusion, to which I declined. A day later I received a follow up call suggesting that I have scan preformed as soon as possible to see where my scores are at and to also see if the Reclast infusion did anything for me and they also sent a referral to my primary and suggested that I see a neurologist for my on going symptoms; I go this coming Monday for my scan test. They then scheduled me for a follow up appointment with my endocrinologist; January 2026!
I do have some underlying medical issues that could be contributing to the symptoms ; Ankolosing spondylitis, bladder cancer treatment (5x) and a constant burning sensation in the bladder area caused by the treatments. So, maybe I am a little more sensitive to these medications. All I read about Reclast and they take ZERO acknowledgement for these symptoms and then say, well maybe for a short period of time but not 10 months out! And to conclude; I’m told that it is okay to take your time and really think about the benefits of receiving this injection that has very little side effects; severe lower back pain and/or jaw discomfort; like I really want to take a chance on either !
The more I sit and think about the issues the worse the symptoms! Honestly, our brains and developed to assist in our bodily functions and to prevent us from doing things that can hurt us….not always providing the correct information. I know I did not injure myself to cause these pains and feel that I need to keep sending the message to my brain that this pain is only temporary and only caused by my poor judgement of receiving an infusion that had so many side effects.
Try, and I emphasized really try and focus away from the pain and focus more on your daily activities! Our Brain has alerted us there is an internal problem. Okay, I acknowledge this, now I’ll take control from here out and just really try to focus less on the pain and more on your daily task and hopefully, eventually the pain will lessen and life will become a little more manageable!