Mostly this is to those here who have children with epilepsy, and some credit given to Leonard, for you. I don't very often write in but I do read here. I'm 64, have had e since approx 23, and have tried probably 90% of drugs out there, when there was about 3-4 only too. ^ neurologists during that time.

I was out of my parents house when seizures started and I have been alone approx 28 years of those, married now for 15. In the beginning my attitude was, no point in taking meds (note too 3-4 available when 22) because they didn't work (and it was true), and thought if I ate well enough I'd be fine. Eating well contributes it's definite good but seizures did prevail. Mine were nocturnal grandM only 1st 20 years but, I had to hide a chewed tongue for a few days at work. Leonard and I have more not so cute stories we probably won't be sharing but... I think the worst of this tour has been INFORMATION (good information!). It's poor enough anywhere, in epilepsy fields as bad, so hang on. A very important note on that !!!.... Not all info will be bad or useless. You can flood yourself days on end, get nothing, and not be sure who/what to trust. A neurologists fact is that they can be a dime a dozen and,,, when an adult with your child, with e,,, neurology EXpertS can have you in panic. DO accept that they could be wrong. Remember that their information at best is just a few years ahead of yours and that their practical use of new info is subject to not enough history on new science/uses. Keep reading and listening to other stories. Occasionally something will come through useful. Visit/read other groups for parents with children with disabilities that are not epilepsy.

My seizures are not GM any more (any more?) but enough to keep me from a regular job. Being self employed got me through that hoop, not everyone can, not as great as some say and it has it's stomach acid too. Disability $ doesn't buy rent these days. Start chasing any source of money you can find to help too.

Leonard has to have been a good filter for e info in his life. Go ahead and trust what he has to give. We (older groups) don't have all the answers but have run through a large portion of junk info to get there. You will find some (older groups) who have given up, think they are doing battle, become too tired and some cynical/angry. Don't let it discourage you. There is an evolution of drug-epilepsy-medical info that our age group has seen that will give you another perspective. I'm not as well equipped as Leonard. I've read his input for a couple years. Go ahead and use it.

Rick

Ok you found info I haven't! She has progressed from the cationic to grand mal with puberty...her pediatric neuro has been great up until now. He was hesitant with answers and it scares me! She takes 200mg of lamictal twice a day 20 mg aderall in the a.m. and only if she's in school. A .2mg clonidine at nite. 10mg diastat for when seizures happened. That worked for the most part, had the occasional break thru seizures but the diastat stopped them instantly it seemed. Since puberty really hit about a yr ago, she was a premie, 3lbs 12ozs, was told we'd have some deveopmental delays, they turned into grand mals and it requires an er visit because the diastat failed. Now her neuro added a 500mg keppra halved given a half in the a.m. and half p.m. she's shown the aggressive personality you mentioned. She's hot headed anyways but it is bad since the added meds 8 days ago tonite. amy advise is greatly appreciated!! Thank you so much for responding to me! I feel so useless to her and I'm so frustrated!!!! I can't fix it!!! This is my baby, a mother sees about her children. We also have a 14 yo son that has no medical issues other than pollen allergies...he lives thru it with us in fear of the next one. I'm sorry so lengthy or spelling or whatever, I kind of just poured it all out there. Thank you so very much again! I'll stop here for now.thank you
Dj's mom