Tymlos side effects

Posted by tkdesign @tkdesign, Apr 16 9:00pm

Does anyone find Tymlos to cause nausea or stomach pain or gerd? I want to avoid any drugs that can worsen GI issues. Already have barretts esophagus and past GI surgery.
How often should calcium levels be checked when using it?

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@dmshope

Thank you for your encourgement. It was a long complex job to try to figure this out. The thought is that, for me , the tymlos was building up in the body. I do not process toxins fast or well - hormones, toxins and medications must be processed ( detoxed) in the liver in order to be eliminated from the body. Normally I do not have a probelm , as I eat cleanly, organic, no caffiene, no alcohol, no drugs ( not even tylenol)., no frageances no chemicals.etc. However, tymlos is a hormone and must be processed. Since I am a slow processor, the hormone began to sit in my system and get attracted to sites it could attach to - the pancreatic islets ( loaded with PTH receptors) were my vulnerability and became 'clogged' so the enzymes could not get to the digestive track. I believe I have always had a vulnerabiity there so I dont know if the pancreass continued to be inflammed even while I as on enzymes - but I am now off tymlos and have returned to 'normal' My ayurvedic /naturpathic physician veiws digestion not so much as a stomach issue as it is a liver/gall bladder/ pancreas issue. This is a different prespective than most GI people who seem to assess digestion as always a stomach issue or acid issue. I did not have a stomach problem or an acid problem.
I was very lucky to arrive a solution ( supplement with enzymes and liver support) to manage the pain and digestive issues. It gives us hope that we can learn to handle the side effect that are not severe and do what we need to regain health.

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How long did you take the tymlos? I believe I’m like you..I process hormones very slow. And Ive got a long history of IBS. When I get the nausea and stomach pain from Tymlos it lasts 12-24 hrs. I had to go down to 1 click from 2..and still getting nausea. But I would guess at such a low dose I won’t get any benefit. 🙁 I haven’t tried Forteo but I’d guess I would feel same. I tried Evenity and had no GI trouble but horrendous insomnia…literally could not fall asleep for a month.

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@dmshope

I have never had any stomach issues and started tylmos with little concern for digestive discomfort. I read that TYmlos does not cause GERD but the side effects listed as common, do include stomach pain. Unfortantely I began to expereince upper stomach pain six months after starting tymlos; this was accompanied with excessive burping and feeling that I was 'full' after eating just a few bites. Food would sit in my upper stomach. I had no intestinal gas. I spoke to the tymlos pharmacist who concurred that they receive quite a few comments about upper staomch pain but they did not have any suggestions to help.
Allopathic doctors could not help me - I did not have an ulcer and did not have GERD.
After much research, and seeking naturapathic help, I learned that there are parathyroid receptors all throughout body and indeed the pancreatic islets are full of PTH receptors. Pancreatic enzymes are essential to digest foods. My symptoms echoed pancreatic insufficinecy. Voila.... I started taking pancreatic enzymes with meals and all my sympotoms subsided. It was a simple inexpensive solution but took a long time to figure out. We are each different and will have different side effects. The key is to figure out how to manage them. Sending postive energy and healing light to bring you the best of health. Stay positve and engaged. We can help each other along the way....

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Thanks so much. Which specific brand and amounts of pancreatic enzymes are you taking with each meal?

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I have been on Tymlos for 7 months. I have noticed mild constipation as the only side effect. I just had a follow up DEXA and my T score for the vertebral spine went from -3.1 to -2.1, putting me in osteopenia instead of osteoporosis!

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@bboon55

I have been on Tymlos for 7 months. I have noticed mild constipation as the only side effect. I just had a follow up DEXA and my T score for the vertebral spine went from -3.1 to -2.1, putting me in osteopenia instead of osteoporosis!

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weird, i have the opposite of constipation...what dose are you taking?

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@tkdesign

How long did you take the tymlos? I believe I’m like you..I process hormones very slow. And Ive got a long history of IBS. When I get the nausea and stomach pain from Tymlos it lasts 12-24 hrs. I had to go down to 1 click from 2..and still getting nausea. But I would guess at such a low dose I won’t get any benefit. 🙁 I haven’t tried Forteo but I’d guess I would feel same. I tried Evenity and had no GI trouble but horrendous insomnia…literally could not fall asleep for a month.

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I took tymlos for 2 years. We are all different and react with side effects where we are vulnerable. IBS is a challenging condition and I hope you have good support for and find a path to recovery. Ayurveda has much support in this area but it is 'out of pocket cost' and requires a comitment to do the work, amend lifestyle and diet. Nonetheless a good ayurvedic doctor is a worthy part of your team.
DOnt underestaimate what a low dose can do to help.... you are doing what you can for best possible result.

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@susanjohnston

Thanks so much. Which specific brand and amounts of pancreatic enzymes are you taking with each meal?

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I take a broad spectrum enzyme by NOW called Digest Ultimate. This is because I didnt have a specific need ( like inability to only digest fats) but needed all the enzymes. I took one before lunch and that was all I needed; occassionaly if I were going out to eat at night, I woudl take another. I do not need much of anything to make a big change in my body. SOme people may need one cap at each meal.
I tried a pharmacitical brand THORNE Pancreatic Porcine enzymes which has only the 3 primary enzymes, but this did not work well for me. Sending postive energy for your healing

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Thanks so much. I do appreciate your quick response.

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