Started Big 3

Posted by Nancy @nlee1954, 3 days ago

I started treatment and struggling. Had to go off Ehambuthal because of severe gastrointestinal side effects.

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@rmoore901

How are you taking them? All together or spaced out? With food? And are you taking probiotics? Are you 3x per week or daily. Your Dr may be able to adjust things as needed to help. Agree they are difficult to tolerate for many people. My ID Dr has me space them out instead of taking them all at once and I do feel like taking the probiotics helps. He did provide guidance for a FODMAP diet if needed but I haven’t gone that route. Good luck, it’s tough and you’re in good company with lots of support here.

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Thanks for your idea about FODMAP. I am also on this regimen plus and need help in navigating the food-drug highway.

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@nlee1954

Was it stomach like flu? I have had no diarrhea-just feel weak, nauseous, and sick

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I looked up my notes and I was on Rifabutin (which I was thinking is same as Rafampin) No diarrhea, horrible aches in back and legs, stomach pain/nausea, achy eyes, headache, felt weak and had fever. The second time I tried it I felt like a truck hit me with same symptoms.

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