I also have NET and DIPNECH. Both were found in August of 2024 when my tumor in my lung was removed. I never had a cough but have always had to clear my throat. I am given a blood test every 3 months and CT every 3 months after that. So far I have two very small spots on my right lung that we are watching for any changes. My left lung is where my surgery was. So far no carcinoids either. Wish there was more info on DIPNECH, as sad as it sounds, I am glad I am not alone in this journey. I am of polish decent. God Bless you all.