Hysterectomy 4 months after FIGO1 Endometrial Cancer Diagnosis

Posted by fos54235 @fos54235, Apr 22 7:46pm

I am 61. Had spotting on 2/4/25. Saw GP on 2/5/25 for PAP. Transvaginal ultrasound results 1.6 CM thickness the following week. D&C on 3/4/25. Pathology report received following week Endometrial cancer FIGO 1. There is only one Gynecological Oncologist in my area & had to wait 3 was for appt. CAT scan & EKG on 4/22/25. Found out today my hysterectomy is not scheduled until 7/10/25. Waiting 4 months for surgery after the pathology report seems too long to me. I am going to try to get in another gynecological oncologists practice 1 hour from my home for 2nd opinion & hopefully get surgery sooner. What are your thoughts on a 4 month wait?

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RefluxGoAway | @njp515 | Apr 23 6:06am

I had mine on day 32 after the D&C. They said that was normal; some ladies get in faster, although they want reasonable time after D&C. I was also FIGO grade 1 with no genetic marker abnormalities. They should want to get the staging done sooner, in my opinion and experience.

Helen, Volunteer Mentor | @naturegirl5 | Apr 23 7:03am

@fos54235

Do you know what kind of endometrial cancer you were diagnosed with? That should be in your pathology report. Here is a description of the different kinds of endometrial cancer.

American Cancer Society: What is Endometrial Cancer:

-- https://www.cancer.org/cancer/types/endometrial-cancer/about/what-is-endometrial-cancer.html

I was diagnosed with endometroid adenocarcinoma, FIGO Grade 1 in late July, 2019, saw the gynecological oncologist a week later and had my hysterectomy one week after that. I realize that my surgery happened much faster than many others report here on Mayo Clinic. I think a 4 month wait is way too long for cancer treatment. In your place I would want another opinion and try to get surgery moved up much closer in time.

When do you think you will call and arrange for a second opinion?

sbryant | @sbryant | Apr 23 9:08am

Hello. I was diagnosed on March 14 and my surgery isn’t until May 19. I felt the same way as you. I’m having a laparoscopic robotic hysterectomy. She offered to let a colleague do it sooner but I didn’t want that or she could’ve done open and I didn’t want that either. She assured me she thought it was fine to wait.

klue | @klue | Apr 23 10:01am

for me it took 12 weeks from 1st symptom to surgery

cialonel | @cialonel | May 1 4:20am

In reply to @klue "for me it took 12 weeks from 1st symptom to surgery" + (show)

I was diagnosed Dec 8th and had the hysterectomy Jan 19th. Be well, I know this is hard but it's amazing what you can do when you need to!

Colleen Young, Connect Director | @colleenyoung | May 3 8:33pm

@fos54235, I thought I'd check in. How are you doing? Did you get a second opinion?

fos54235 | @fos54235 | May 5 10:34am

In reply to @colleenyoung "@fos54235, I thought I'd check in. How are you doing? Did you get a second opinion?" + (show)

Can’t get in for 2nd opinion until June 30th. Had CAT scan 4/22/25. Radiologist recommended a follow up in 3 months for a mildly enlarged paratracheal lymph node otherwise no metastasis disease. Notes mild endometrial thickening with no adnexal lesion. Oncologist wants a PET though. Schedule for 5/15/25

fos54235 | @fos54235 | May 5 10:40am

In reply to @naturegirl5 "@fos54235 Do you know what kind of endometrial cancer you were diagnosed with? That should be..." + (show)

Endometrial carcinoma FIGO 1, with squamous modular metaplasia. Tumor cells are positive for ER & wild -type p53.

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