Wow, I finally found autonomia - it was actually under dysautonomia. That’s awful. I have never heard of that before. And I’m hoping I don’t have SIBO because I think you’re right; it’s probably not going to go away unless I do something. I think it is possible though that I have stress related diverticulitis.
I totally hear you about doctors not believing you when you tell them that you have side effects that they’re not familiar with. That happens to me all the time! I’m super sensitive to things and I have to take a lower dose than other people and I get allergic to things very quickly, but doctors never believe me. I’ve had some of them tell me that I couldn’t possibly have felt whatever they gave me because of the low-dose, but they’re absolutely wrong. And yes, then they try to act like you’re crazy and you should see a psychiatrist. Oh my God, I hate that! To be honest, I thought maybe they were more likely to do that to women than to men. But I guess it’s an equal opportunity area. And yes, the pharmaceutical companies couldn’t care less about us. Everything’s money, money, money.
I salute you for having the courage to get through each day without thinking about what could possibly happen, but then, really, do any of us know what could happen? There are no guarantees. 7 1/2 years ago, one night I kissed my husband and he went into his bedroom (we had to sleep apart because his legs were jerking and we had no idea that it was from Parkinson’s) and two hours later, he woke up psychotic and never regained his sanity. He was diagnosed with Lewy body dementia with Parkinson’s from his exposure to Agent Orange in Vietnam, where he did not want to go, but where he was drafted. He was sick for four years and then passed away. And four years ago my only niece, who was only 50 years old, died from a sudden heart attack. Well, I’m being cheery. Sorry about that. I’m just saying that you might as well live every day to the fullest, because, who knows. I remember this quote I read from a poet, who said, “Live every moment as if you have forever and every day as if it’s your last.”
Sounds like pretty good advice to me.
I’m sorry you have to deal with all you’re going through and if there’s a chance in hell that you can get better, I wish that for you. Thank you for sharing.