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Sudden onset, stomach distress, and inability to eat.
Digestive Health | Last Active: 7 hours ago | Replies (12)Comment receiving replies
Hi,
If you have SIBO it is unlikely you can beat it without medication. I have had no luck at stopping it when I first realize I'm heading into SIBO. Sudden change of diet and trying to starve it out have all proved ineffective with me. It is an infection/ bug that needs to be killed off. That is why I keep a supply at hand, I'm just grateful that these meds work for me. Had they not it would be a completely different ball game, out of my financial reach, expensive to say the least.
I'm unable to medicate diabetes and high blood pressure, having just finished trialing the last known BP medication available to me with disastrous results and finished all diabetes meds 1 month ago including all insulins with again disastrous results. I don't mind and understand not everyone can be medicated. I get more than a little annoyed at Dr's who resort to the psychological tag when they can't get a grip that medication and me don't do well. They fail to realise that side effects are only the ones that have been reported. For the few of us that find side effect that are not on the list it must be psychological, right! Seems to be the favoured reasoning with their inability to treat me. Fortunately my wife understands how I react to medication, usually I become something even I don't want to be, she insists on being present at all my Dr's appointments. It is interesting how quickly they back track with my wife's testimony and my results of meticulous monitoring to prove my point. I get tired of proving what drug companies should have done when testing medication for everyone, not just those who can tolerate their concoctions.
Autonomic polyneuropathy means all my nervous systems are corrupted. Some permanent while other come and go daily at their pleasure. My entire digestive system is corrupted, I have problems from long term high glucose levels, PN and sky high blood pressure CSVD but I still function as best I can. Without warning Autonomia can kill me instantly, sounds bad, but yet I carry on because we all die sooner or later so why concern myself about what I can't control or medicate. I work through each day as it comes trying to ignore it and suppress it, putting it out of my mind. I push myself everyday to do better because I can't just give up, that's not in my nature and I won't allow it while I have a choice.
Cheers
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Wow, I finally found autonomia - it was actually under dysautonomia. That’s awful. I have never heard of that before. And I’m hoping I don’t have SIBO because I think you’re right; it’s probably not going to go away unless I do something. I think it is possible though that I have stress related diverticulitis.
I totally hear you about doctors not believing you when you tell them that you have side effects that they’re not familiar with. That happens to me all the time! I’m super sensitive to things and I have to take a lower dose than other people and I get allergic to things very quickly, but doctors never believe me. I’ve had some of them tell me that I couldn’t possibly have felt whatever they gave me because of the low-dose, but they’re absolutely wrong. And yes, then they try to act like you’re crazy and you should see a psychiatrist. Oh my God, I hate that! To be honest, I thought maybe they were more likely to do that to women than to men. But I guess it’s an equal opportunity area. And yes, the pharmaceutical companies couldn’t care less about us. Everything’s money, money, money.
I salute you for having the courage to get through each day without thinking about what could possibly happen, but then, really, do any of us know what could happen? There are no guarantees. 7 1/2 years ago, one night I kissed my husband and he went into his bedroom (we had to sleep apart because his legs were jerking and we had no idea that it was from Parkinson’s) and two hours later, he woke up psychotic and never regained his sanity. He was diagnosed with Lewy body dementia with Parkinson’s from his exposure to Agent Orange in Vietnam, where he did not want to go, but where he was drafted. He was sick for four years and then passed away. And four years ago my only niece, who was only 50 years old, died from a sudden heart attack. Well, I’m being cheery. Sorry about that. I’m just saying that you might as well live every day to the fullest, because, who knows. I remember this quote I read from a poet, who said, “Live every moment as if you have forever and every day as if it’s your last.”
Sounds like pretty good advice to me.
I’m sorry you have to deal with all you’re going through and if there’s a chance in hell that you can get better, I wish that for you. Thank you for sharing.