I recently had an episode that several doctors said was a seizure but no one could put a name to it. I stopped walking an couldn't or wouldn't move. EMTs laid me down and an ambulance took me to the hospital. I became unconscious for 2 1/2 days, was intubated. My temperature went up to 103.4 degrees and my blood glucose rose to 614 mg/dl. Had many tests, EEG, MRI, CT scan, spinal tap, blood work. Nobody could tell me why this happened. Any ideas?

I wonder if you experienced a seizure that progressed into Non-Convulsive Status Epilepticus. Were you walking and aware that you had stopped, or was your awareness impaired? Did the hospital place you in an induced coma? Do you have any memories of this episode? Do you know the results of your EEG? Have you been diagnosed with epilepsy or diabetes? All those seizures can increase glucose levels. I never heard of glucog evels anywhere near that high. Do you know how long your ability to walk was impaired? High glucose levels could potentially lead to a seizure or coma. Very curious episode.
Please keep us updated.
Take care,
Jake

Hi Everybody!
About 3 weeks ago, I experienced my first PNES episodes, giving me a much deeper understanding of the posts and experiences that have been shared here.
It all started with an aura followed by a strong complex seizure. So, I respected my body and rested for the rest of the day. To my surprise, several hours after my complex partial seizure, I began experiencing a few auras again, which continued and increased over the next day. My doctor then recommended I go to the hospital, where I was admitted to the EMU. After the EEG results were analyzed, I received the unexpected diagnosis of PNES alongside my existing epilepsy.
My doctor's analysis and diagnosis: Following my first status epilepticus experience last December, I developed an intense fear of it recurring. This fear became deeply embedded in my subconscious. The complex partial seizure I had earlier that day, after almost 8 months without any seizures, created significant anxiety and insecurity, which then triggered approximately 20 pseudo-seizures that felt exactly like my typical auras. My doctor explained that it's quite common for patients with epilepsy to also experience PNES events.
This all occurred during a period when I was reducing my CBD dosage while facing some stress. Both my doctor and I learned an important lesson – this wasn't the appropriate time for any medication adjustments, even minor ones like I was attempting. I've returned to my previous CBD dosage and slightly increased my Keppra dosage to provide additional protection during this vulnerable time, given my parents' current health situation.
I must acknowledge that while my doctor was aware of my parents' circumstances, I hadn't fully communicated how emotionally fragile this situation has left me. That was my oversight, and I realize now how important it is to be completely transparent about stress levels and emotional state with your doctor.
Since I've been back on my previous CBD dosage and increased Keppra dosage, I've had no more seizures and/or PNES events, thankfully. However, I feel that my memory is still a bit impaired, similar to what happened after my status epilepticus in December. Did any of you also experience decreased memory after PNES episodes?
Thank you all!
Chris

@santosha So my Mayo neurologist has me upload my seizures as a private YouTube upload and then I send him the video links in the portal. At one point he offered to walk through the videos with me to reveal specifically why they were FNDs versus epileptic, but I was very hesitant to know. Psychologically, seeing myself seize is so troubling for me. I hate even just catching a glimpse when I'm uploading the videos. He also said my seizures are very unusual, and he feels that after seeing me seize for over a year now, he can identify them immediately. Like you, I have both types of seizures, so distinguishing the seizure type is only important if they need to make medication changes. Fortunately, I'm on Vimpat and Gabapentin so the feeling is they are both relatively safe so since I primarily have FND seizures recently we're just going to assume the meds are keeping the epileptic seizures under control.

Send me a private message and I can share with you how I used Google's MedGemma to have it review the seizure video in consultation with my Mayo neurology team. I would never trust any other AI tool to provide trustworthy clinical insights at this time. There are obviously a ton of ways the other tools can help, but just not diagnostic perspectives.