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@gigiv My local pulmonologist prescribed Acetylcysteine (nebulized). I filled the order but the product is not at all user friendly. After talking to the pharmacist and a bunch of emails back and forth with the doctor, I just didn't have confidence in it. It is too long a story for now but basically it comes in these big bottles, you use only small amounts, that you have to measure out of the big bottle, there is no way to keep everything sterile, you refrigerate the drug bottle but it can only be refrigerated for a few days and then needs to be tossed long before it is used up (due to contamination concerns). I just felt like there was a high potential for contamination across the board. Since neither my local pulmonologist or the pharmacist seemed to know much about how to actually use/store the drug, I am holding off on starting it until I talk to NJH in June. One more question for the list!
Replies to "@gigiv My local pulmonologist prescribed Acetylcysteine (nebulized). I filled the order but the product is not..."
I agree with you on the nenuluzed NAC. I started on it in January. Fairly expensive as well. Once the bottles are opened they need to be refrigerated and used within I believe 96 hours. And yes, each dose has to be measured out. They gave me a plastic eyedropper so cross contamination is definitely a concern. It also has a sulpher component to it so smells/tastes like rotten eggs. Watch for the side effects as well. It can cause tiredness and mouth sores. Also not indicated for patients with low blood pressure. I discontinued it after two weeks.
I asked to be prescribed Acetylcysteine to be used in the nebulizer. Mine came in individual single-dose glass vials. Perhaps you could ask your pharmacist for this?
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@bayarea58, please let me know what NJH says about it when you meet with them. It does not make sense that it does not come in individual sterile vials. Hopefully I will not need it. I would rather take the NAC pills than nebulize it. Thank you for sharing this. If my pulmonologist orders it at any point, I will ask him to get it in individual vials or prescribe something different.
Best wishes of great health to all of us!